Hey, a shout out to all the DS support group One way or another we all have benefited from this site !!!!

I joined the group when TJ and Curt would have quite the heated discussions. Miss those debates !!! Of course we all miss Curt !!!
And TJ, even though Curt didn't like all the research links you posted, we all learned a lot form both of you !!!!

Great idea Kimber!! I can honestly say positive thoughts and determination have helped me be symptom free !!!

Robin

Interesting!
Of course I wish everyone the best.

Some people that I want to be better very soon and I would like to send good thoughts to are Curt, Annette, Marvin, Debbie, Cathi, Marty, Dean, Steve, Ross...In no particular order.

The best of thoughts for the best strength possible.

Love,
TJ

Very timely; I just decided to set up appointment with counselor as I do need an implant of " positive" and get rid of the negative frustration.

can not do it alone anymore when I still can not make my walk around the block...

You will never know the depth the feeling of your words meant to me. I am scared to death, I feel so alone. I am just a mess but this has to start somewhere and Monday is the beginning of a new day if it is God's will. All of your support is priceless. I just love each of you to pieces. BUT I am still so scared. I have been through so much without any success so my hopes aren't doing jigs. I am much more subdued, quiet, don't want to talk about it. Force myself to eat, have had stomach problems and diahhrea for two weeks. Don't even feel like coming over to the computer and don't know when I have had the strength to leave my room. Dammit this is the time in my life when I have waited and planned to do all of the things on my bucket list. I should have been in Switzerland with my dear friend this summer. I should be buying a big RV and traveling the US to visit all of the Alzheimer's friends I made. Instead I am tied to a bed. Just ignore my whining. I am just having a NEEDY.

Dean

JT You sweet man you can ask Katie what a needy is!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Dean

Dean,
I am sorry you are having a tough (under statement) time. Make yourself believe the answers are coming. Belief can be just as important as medication. Try to find something positive each day. Even if it is small. Embrace it. Let that feeling fill you. Use it. Enjoy it. MG may take control of our bodies but it cannot control our feelings unless we let it. It cannot take my joy. It can make it harder to find but it cannot take it.

I wish I had a picture of a rose to send you.

My most positive thoughts go out to you.
Kimber

How well I remember meeting you Ross (though my wife and her family have known you for 39 years!) -- it was the day Amy Winehouse died!

I think I told you about Curt, and what a difference his kick-ass attitude had for me. You could be macho, and have MG, and just treat it like another obsticle -- Nora Ephron would say "above all, be the heroine (or hero) of your life, never the victim."

Lots of people first come on this site and have just been diagnosed, or have almost been diagnosed, or are waiting. They do frantic googling, and they feel guilty, because this disease makes you lazy, and there must be a reason. Perhaps we did something in our past that we are paying for now? Perhaps if I just cut XXXX out of my diet I will be all fine and dandy again! This site, and all my fellow sufferers who write about their lives here, make the whole concept of having MG more manageable. Less scary. Reducing stress I would otherside give myself by frantic googling!

I would be remiss if I didn't make special mention of Rev. Dr. Kerry Bunn. I watched his videos with one heavily-lidded eye during my diagnosis, and they made a difference. His pre- and post-mestinon sit-ups were inspirational, and I fully intend to get around to doing one of them one of these days.

Right now I will just "chill" and hope all of you can too...
~joe

Yeah, let me get some more shout outs for well being here!

Send your thoughts to Lorraine, Jeannie and Kerry as well!

We all could just use a BIG BOOST of luck. CMON GIVE IT TO US

It rained here yesterday and it felt soooo wonderful. To have relief fromfr the heat and fire and that is what I am praying for, for everyone. Relief from the fire and pain of illness. For relief from all the heavey burdens of anyone who needs it. For anyone who feels alone to know that they arw loved.

WOW what awesome posts. My love goes out to each and everyone of you and I can feel your love in return. I'm so thankful for this site.

Sending you strength,
Gail

I have a confession...I have been in such a funk I have avoided even reading this post until this morning. I am so glad I finally read it.

You guys are the best. It can be a lonely and frightening thing to live with mg. I can't imagine not having my mg brothers and sisters. Even when I am quiet I know you guys are here and I am not alone.

Dean, God bless you and your upcoming appointment. Know the room will be crowded because we are all there with you. You may have to tell us to hush so you can get some rest. ;-)
Love you all,
Cathi