Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hi everyone,
For the past year I have been feeling uncomfortable in the tongue region. After about 6 months I saw an ENT who diagnosed me with silent acid reflux. She put me on a bunch of meds all of which did not resolve the problem and in fact it gave me real acid reflux symptoms! I stopped taking those meds.
The last few months I have been getting bouts of severe weakness in my legs that lasts for a few days then comes back after a couple/few weeks. My right leg is now slightly more fatigued than the left although it is slowly getting better. My right leg tires after exercise even after a light workout.
My tongue issue is slowly getting worse because now I feel like I am slurring my words (even though everyone says they don't hear a change). It feels like my tongue gets slightly uncoordinated when I speak. My lower lip also feels kind of weird when I talk, feels uncoordinated/stiff. And now I have soreness below the tongue which I thought was swollen salivary glands but an oral surgeon has seen it and he says it looks fine to him (also had a ct-scan which looked fine to him). Also all the doctors I've seen say the tongue looks normal on examination. I also have a feeling where my throat feels like it's closing up but I don't know if that is a result of the GERD or not (the ENT did say my upper esopahgus was swollen which can give that feeling).
The tongue and lip issues gets SO MUCH worse when it is even slightly cold outside, I can almost not speak any more it feels so stiff.
I saw a neurologist who suspected MG: I had a blood test for anti-ACh receptor antibodies but they were negative, I just had a blood test for anti-Musk antibodies and am waiting for the result. She's giving an EMG next week although I've had one before with another neurologist where he tested my legs and he said it was "normal". She wants to test the tongue itself. I have the feeling everything is going to come back normal... :(
I'm so lost as to what is causing the tongue issue. I've never heard of GERD causing slurring of the speech before... Has anyone else felt the symptoms I've described here before? Is your slurred speech noticeable to others?
For the past year I have been feeling uncomfortable in the tongue region. After about 6 months I saw an ENT who diagnosed me with silent acid reflux. She put me on a bunch of meds all of which did not resolve the problem and in fact it gave me real acid reflux symptoms! I stopped taking those meds.
The last few months I have been getting bouts of severe weakness in my legs that lasts for a few days then comes back after a couple/few weeks. My right leg is now slightly more fatigued than the left although it is slowly getting better. My right leg tires after exercise even after a light workout.
My tongue issue is slowly getting worse because now I feel like I am slurring my words (even though everyone says they don't hear a change). It feels like my tongue gets slightly uncoordinated when I speak. My lower lip also feels kind of weird when I talk, feels uncoordinated/stiff. And now I have soreness below the tongue which I thought was swollen salivary glands but an oral surgeon has seen it and he says it looks fine to him (also had a ct-scan which looked fine to him). Also all the doctors I've seen say the tongue looks normal on examination. I also have a feeling where my throat feels like it's closing up but I don't know if that is a result of the GERD or not (the ENT did say my upper esopahgus was swollen which can give that feeling).
The tongue and lip issues gets SO MUCH worse when it is even slightly cold outside, I can almost not speak any more it feels so stiff.
I saw a neurologist who suspected MG: I had a blood test for anti-ACh receptor antibodies but they were negative, I just had a blood test for anti-Musk antibodies and am waiting for the result. She's giving an EMG next week although I've had one before with another neurologist where he tested my legs and he said it was "normal". She wants to test the tongue itself. I have the feeling everything is going to come back normal... :(
I'm so lost as to what is causing the tongue issue. I've never heard of GERD causing slurring of the speech before... Has anyone else felt the symptoms I've described here before? Is your slurred speech noticeable to others?
anyways, my symptoms started with losing my voice, but after 3 years of that going on and off, i saw an EMT, who said everything looked fine. he sent me to see a neurologist who did an EMG (negative), but he had me do the blood tests: AChr (positive, about 10 times higher than accepted) and Anti Musk (negative). also, VERY low Vit D levels (i take 10 000 iu/ day for 2 months). but in January 2017 the symptoms increased in number: slurred speach (i am an elementary school teacher and i sound like i'm drunk), stiff tongue and pain and twitch and spasms bellow the chin. i get this pretty often, because of stress, cold weather (although ice packs help) and especially when i fight infections (sinus and urinary infections). i take my Mestinon 60 mg/3 times a day, but when infections are really bad, since i don't take antibiotics because i suffer from too many allergies, i take i medical leave. 2-5 days, it depends. i sleep, i keep my mouth shut, relax and i get better.
also, sometimes i get arms and legs weakness. it's the symptom that i get less often (1-2 times a week).
so, hang in there everyone! and keep sharing! it's good for everyone:)
Ana
I have CMG (congenital mysthenia gravis) which took a lifetime of doctors telling me nothing was wrong till one finally ran this other test and declared I have had it all my life. This AM i woke up with a weak tongue and looking for an MG site when I saw the post above. I don't know if that person is still a member but I wanted to inform her that just because the dr. says you don't have mg doesn't mean you don't have it. In fact I hope everyone on this site who has MG symptoms will remember this and not let the DR. give you a negative diagnosis till he runs both tests. Pateints need to bring these phsyicians up to date. We