Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Cathy
If you have thyroid problems with your levels it is best to see an Endocrinologist as this is totally their territory. Local doctors don't always test for everything related to thyroid. There is a numerous amounts of tests and usually the local or general doc just test for a couple which can not be an accurate look at what is going on.
Wikipedia says
"People with MG suffer from coexisting autoimmune diseases at a higher frequency than members of the general population. Of particular mention is coexisting thyroid disease, where episodes of hypothyroidism may precipitate a severe exacerbation.
Myasthenia gravis is associated with various autoimmune diseases, including:
Thyroid diseases, including Hashimoto's thyroiditis and Graves' disease
Diabetes mellitus type 1
Rheumatoid arthritis
Lupus, and
Demyelinating CNS diseases"
In my case, having a mother with an auto-immune disease (polymyalgia rheumatica), hypothyroidism due to an auto-immune problem, and sleep apnea/breathing problems are and should have all been indicators I had undiagnosed MG for some time before my eye lid went half shut and my double vision actually got the final MG diagnosis. MG rarely seems to come without complications.
I am having flu like symptoms right now, but don't want to go to my GP just because I don't want her to give me something which isn't safe or ok with MG if for sure I do have MG.
Sorry for all my rambling, but I am so overwhelmed with all these problems and a bit frustrated at having to wait to get into the dr. urggg. I know it is just another week, but I am so inpatient
Thanks again!
k-!
Not being able to catch your breath can be from both thyroid problems and MG. I am not sure you will be able to get into an endocrinologist before your appointment with the neurologist on the 8th, but I would suggest setting an appointment up now. It usually takes a month or so to get in, but you may need a referral though. Ask whoever said your thyroid was high to do a referral and maybe they can get you in sooner.
Keep us informed how things are going. Hope you get some answers soon.
Cathy
I can't thank you all enough for all the wonderful words of wisdom... Thank you thank you thank you
k-