Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
after countless hours of research in the net, i as a mg generalized bulbar patient with thallassemia was able to accept a factor that i must relay to all. as i am an extreme severe patient with the worst type of problems with my resiratory system
i will explain as it is necessary for people like me to be aware in the age of covid19 of the grave danger that we can get
thallassemia is an anemia which our system do not reproduce the amount necessary of red blood cells. (called a DISORDER that reduce the amount of oxigen carried by the red blood cells, and we cannot escape our destiny.
the cdc stated that we are in the very stage that could be dangerous for us.
so please be kind to yourselfs if you have thallassemia as i, you can check their explanation at cdc.org.
also note that if you contact doctors some may not be aware of this fact, and will npt be able to orientate you properly
best of luck
Andre
best of luck
Andre
- Nan
I had never heard of thalassemia before. It is hard enough to have MG without the complication of other conditions.
Good Luck and stay safe.
Russ
thanks for your support, hope the info will provide some good, was nice to founf that the cdc, would provide me with all i needed to know
best whishes
Andre
Thanks for your support, thallassemia being the technical name , communly known, as the meditteranean desease i divided in 2, major and minor, the first in need of continuous transfusion to live, the second minor is a bit differnt but as dangerous as the major, mine was discovered in my 40,s
start filling it by execive tirerness, weekness and few passing out with out know where it was comming,doctorsdiscovered that i was minor borderline major, that i may need transfutions due to tha fact of passing out, so far now at 81, i bypassed all transfusions, even that i had quit few passing out episodes, is not an easy road but is life after all, we all are born with somethins that we cannot avoid, but try to live the best we can
also want to reitered the mention of the cdc. in regard of the organ transplant drugs and covi19.
please all dont take the easy road and brush this comments aside, life is to beaitifull not to do it right and protect ourselfs
best of luck
Andre