Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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Taste for Food... Changes

sandymckinnon
sandymckinnon
Has anyone experienced their taste for food change? Coffee... I loved my coffee, cherished my morning Tim's. Since my infliction I can't enjoy the taste of coffee". Miss it dearly.

Spices... Love hot spicy food. Can't handle the heat now. Made a mild chili last night bound and determined to get "spice in my life" again. I think I'm making headway.

Love to have a social drink. Only out three weeks since hospitalization, and haven't had sip yet. Dr. Says, everything in moderation and hasn't discouraged me from having a taste now and then, just be mindful of intake. Hope I haven't lost that taste too... This weekend at cottage will tell....lol.
DEEW4
DEEW4
I hope that is not a side effect of MG. Maybe something else. I would be very sad indeed if I loss the taste for coffee and heat. I was raised in Cajun and Mexican country.
The only thing with alcohol that I have found is not the taste change. It makes my already weak muscles weaker. so, keep to one, once in a while.
We learn to adjust. Things in our life change. Sad, but true. If not MG, old age was catching me. Take care Sandy and welcome to the group we all wish we didn't belong to..
Dee
snowbeltfolkie
snowbeltfolkie
Yeah. I lost those taste buds as well, not sure if it's the meds, or something related to a medical condition.
I dropped coffee and spicy foods. Still get down an occasional good quality IPA microbrew, but can't tolerate anything from the giant nationwide breweries.
It's not so bad. There's still plenty of interesting food & drink!
(I'm still learning.) (Re-learning.)
deleted_user
deleted_user
My food experience has been different from yours. I find foods I usually like sometimes taste either too bland or have a bitter taste. This has only happened in the past few months and I have had MG four years.
vieve
vieve
My tolerance for spicy food is lower than before, though I do still like them. And, I no longer like coffee as much; it takes too acidic now. In part, it bothers my stomach since I'm taking prednisone which also makes the stomach more acidic, but it does also taste different. I had thought I was imagining it! Or, I thought maybe I just wasn't used to it since I don't drink it as often anymore. But it's likely that my taste itself has changed.
Rhanson
Rhanson
Prednisone seemed to wipe out most of my tasting ability. Much of it came back after I got off high doses. I think prednisone dampened many of the pleasures of life, but it did get my MG under control.

I self-diagnosed prednisone caused anhedonia (no pleasure from usually pleasurable activities). My idea was prednisone stopped most of the brain release of dopamine -- the feel good chemical.

Researchers induce anhedonia in lab rats by large doses of dexamethsalone (very similar to prednisone).

I posted about that http://www.dailystrength.org/c/Myasthenia_Gravis/forum/15782162-anhedonia-prednisone-spockiness

My doctors were skeptical, but accepted my own interpretation of why I was having no enjoyment in life as an acceptable cognitive therapy that was self initiated (which I think meant -- he isn't complaining anymore, so let's not rock the boat...)

Good luck.