Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
My father n law was diagnosed with myasthenia gravis last year and it seems like he is going down hill. What signs should we be seeing and the life expectancy.
sorry to hear about your father, and welcome to the group.
mg, per say is controlable with proper meds taken in conjuction of proper discution with his neuro and understanding of controling mg.
it is a neurological deasease witch will weakens your muscles and other symptoms depending on what your father mg classification falls
but on all they are 3 primordials facts that he should take in
1) control of stress and emotions
2) he should not excert his fisycal capabilities. sports, works or others endewours
3) must accept a change in life standart , sutch as foods, drinks, ect..
those 3 facts are the most detrimental to welness of mg.
also condider that mg, will take him in wild roller coaster rides every so often
it is entirely up to him to learn to control it, this will be the harderst thing to do,
also age and how your body accepts the meds, every is different, and meds act differently with each of us
also it is very important to have extented conversation with his neuro, because the other phase is the implementation of the meds given, the 2 most given drugs for mg. are mestidone9( generic-pyrisdostigmine) and prenisone
once he reach the proper dose dayli, hw will be able to take it from there
mg is not an easy desease to deal with, it depend to manny factors, with the 2 essential doctors, neuro and endo
best of luck (fighter)
Threatening I lost my mom she was 84
Could not breathe without a ventilator and did not respond to any of the treatments!
It is rare but can be life threatening!
MG is treatable by suppressing ones's immune system. If that can be done then he should be able to function OK.
I was 65 when diagnosed. I took lots of mestinon and prednisone until I felt back to normal, then worked on getting the dose down as low as it would work for me so I could be active and feel mostly OK.
Undertreatment is what doctors tend to prescribe -- my opinion. I wanted functionality, and I was already old, so I wanted enough meds to keep me going well. And I insisted, and that worked for me.
There is no point in living long if you can't live well. So that was my choice.
Later I went into remission and so am normal right now.
Good Luck
Russ