Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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bear57 09/25/2012

I have been having alot of side effects I guess from the Inmuran so I called my Doctor today. They want me to start Cellcept tomorrow so I am curious and I hate this word anymore what can I expect from this and how many stupid things am I going to feel from this one? Thanks for any info

Bear

annkemp 09/25/2012

I felt nothing but better
It takes a while to take effect....a least for me it did.
Someone old me once......cellcept keeps you from making the bad stuff but it takes months to get the bad stuff out of your system. It helps me to understand what may be going on.
Ann

bear57 09/25/2012

Thanks Ann, Well I hope it works better than the IVIG and the Inmuran and lets not forget the prednisone. How long before you felt ay difference

mgadvocate 09/25/2012

Bear,

I had the same problem with Imuran. Been on Cellcept (generic - Mycophenolate Mofetil) for several years with no problems.

You will find on the MG Daily Strength home page a list of common medications used for MG. If you select cellcept it shows you 48 DS MG members use cellcept with 81% success. The cellcept page will also give you general information about the medication.

I find Drugs.com is one of the best resources for medications; how to take, SIDE EFFECTS, etc.
http://www.drugs.com/cellcept.html

Cellcept is like imuran, it takes up to six or more months to take effect.

Hope you get good results with cellcept.

Bruce

bear57 09/25/2012

Thanks Bruce 81% is pretty darn good. I will look foreward to tomorrow it is a new day and a new drug.

adamrach 09/25/2012

I love cellcept, it has given me back some more of my life. Made me a little stomach sick in the begenning but if you can get past that. I kicked in in the 3rd month for me.

annkemp 09/25/2012

I believe I felt something 2 weeks later but my improvement was gradual over years...sorry to say...not immediate.
But now 2 years after diagnosis, and a year and a half after crisis, I am doing very well. My neuro said the cellcept takes about a year.

deleted_user 09/26/2012

Just started on cellcept. My Dr told me most of the side effects applied to large dosages used for transplants. she said cellcept were very safe at the low amounts that we use. She expects to start lowering my predinsone in december. Will

jeanniea 09/26/2012

I have been on cellcept for 4 month and "feel" no side effects.
My white count is low and my HCT and Hbg but I think that is to be expected.

I still get plex every week and am waiting for my cellcept to kick in so I can tell you more then:)

revelationman1911 09/26/2012

IVE BEEN ON IT A MONTH NOW,,,,,500MG TWICE A DAY,,,,NO SIDE AFFECTS THAT IM AWARE OF,,,,,,,,

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