I'm not sure who you are, but please know you are not alone.

We are all in this together, no else can understand what dealing with this disease is like.

Be strong, we can all learn and help one another. Even though we are not there in the physical sense we are with you in every other sense.

I will be praying that you continue to find the strength you need to fight this crazy illness.

Rachel

We've talked and I know you're feeling so down. We all really do understand. Please know we are here for you and care about you.
Cathi

SHE IS NOT ALONE...We are here. We understand how you feel like absolute crap. Please let us know what treatments you are doing to help yourself feel better. We should be able to help and please use us as guides and examples through this really messed up disease. Nobody deserves to feel this way, and we all want to feel better. That is the goal here...to feel better...to get better, and to accept what we are goping through. We can do it together. We are even stronger...together

Best wishes for peace,

TJ

Like everyone said....we are here for you. We understand how hopeless it feels at times...but there is hope.

Hang in there!

Judith

Always remember, no matter what you are going through, God will get you through it. Don't give up! You're not alone!

God bless you!

Prayers and hugs. This snowflake of a disease can wear you down but remember that each hour and each day is different...never give up. I am so sorry for your pain, both body and soul but know we are all here for you.
sherry from texas

I am sooo sorry that you are suffering so much. We ARE all with you and care about you. You obviously have friends, even someone who is willing to reach out for you, wow how great is that!!!

Do you think you may be suffering depression. The reason I ask is that I suffer from depression and you sound like how I was before I told my doctor and got help. Please, please ask your friend to go with you to the doctor and talk about all this and see. It is very common with people suffering from a disease such as ours. i can't tell you how the meds have helped me, but they so take some time to kick in, so do no wait if you think this is possible. I talk freely with people about depression because it is just a disease, like any other. Prayers and hugs to you. LOL

I know this journey can be very lonely and frightening, but please know that you are not alone.
Even though our journeys are all very different we do care and are here for you. Feel the love and the strength that we are sending to you.
I will send a constant stream of love and healing vibes - just KNOW that they will reach you. Judie

I don't have MG, but I have a condition called Escobar Syndrome that is comparable to MG with muscle problems (except I have actual low muscle tone with my condition). Anyway, I suffer everyday too and get those same feelings. So, even though I don't suffer your exact struggles, I know how it feels to go through ALL of that which was listed in the post. I've been suffering for quite a while myself, and I've felt that I need to go to the hospital a lot due to my breathing being so bad constantly, but I wouldn't, because I felt I couldn't get help. But now, I'm setting up to possibly get help from a hopital in Ohio and finally got on Mestinon as a new treatment for Escobar Syndrome for some for my muscles. There is HOPE. Keep hanging on and things just might get better and fall into place.

Also, no matter how far down you fall, or even if you think there's nothing to hold on for, I bet deep down you know better. Just all the frustration and sadness can bury the good about what you remember that keeps you going. Love, friendship, and all of that keep you going. Any hobbies. You've held on this long, because you're strong. There's a spark in you. I bet it comes out from time to time no matter what you're going through. Try to find that part of yourself again. I know it's hard, but try to be silly too. Sometimes, my friend and I have a childlike quality to our personality. It's good to just be silly and forget all the seriousness. I know that's hard when you don't feel good. Trust me, I know.

Everyone here loves you and shares your struggles. We're all here for you. So, keep fighting. :)

many people with disabilities go though this. Not just those with MG. I was lucky in a way to be raised by a mother with increasing physical limitations. I have seen her stuggle physically and emotionally with them thoughout the year, but she gave me a wonderful example of being strong in the face of physical adversity. Like I said many people go through this. Feeling like they just don't have the strenght to go on fighting it any longer. But know that you are not fighting it alone. Those arround you who love you support you. Even if they don't quite understand what you are going though. Many of us out here do understand what you are going through and want to help you, encourage you to get up and fight.

Awe...Hey...(((hugs)))) I wish I could give you a real one.
When the others have said they've been there, they are telling you the truth. We've all felt this way, and I'm not going to down play it, as I really want to help you. So, I want to be as truthful as I can.
As a Christian, I pray a lot. And even with a strong Christian life, I too get down, frustrated , and down right depressed. etc....It wouldn't be normal if we didn't.
This disease is difficult....but I believe you Are strong enough to fight it.
But it will take baby steps. and one of those steps is, telling your doctor you are feeling very depressed over dealing with this, and he will no doubt want to put you on an anti depressant...don't be afraid , it
will help, and if you're already on one, you may need a stronger dose, or
a different kind.
It's a chemical thing that happens to people who are chronically ill, and it needs to be corrected...hence the anti depressants.
I don't know where you are in your treatments, but you absolutely have to discuss this with a doctor, or if it's easier, the doctors receptionist, or you practitioner. They deal with these things daily, and have many many patients with the same issues.
I know it's hard, I really do.
Again, I wish I knew your treatments, as I could help in explaining some of the ups and downs, or doctors take this step first...etc...
If you'll allow just a few more moments of your time..I know of several
stories of people who went through horrific medical stuff with their Mg...and are now working, and one is even went on to be a lawyer, after having a few years of crisis after crisises. Her own doctors were giving up...but she had to take those baby steps.....and one part of those baby steps, is recognizing them, and speak them out loud,..I know...but it does help...
Please, if you need anyone to talk to, I'm here...I do understand.
You're in my prayers.