Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Tonight I had to really concentrate to read my daughter a story. It's like I could speak, but in slow motion. I have had times where I lost my speech completely, but it comes back within about 15 minutes usually. I noticed Gwync mentioned this as well. They checked for stroke, but no signs, possibly silent migraines. I'm really not sure if the total lack of speech is MG symptom or something else. My voice is hoarse much of the time, and singing is a joke. My bedtime song repertoire is very limited now. :)
I am happy to report one year later, I have perfectly normal speech, eating, smiling, etc. Now tapering off prednisone, began Imuran and had a thymectomy. Something is working!!!! Just letting you know there is hope because I was in terrible shape one year ago!!
I've noticed over time that it is impossible to control the slur by avoiding certain sounds because the letter combinations affected change. Sherry's explanation of the muscles involved totally makes sense. It seems words like thursday and phrases like "see you later" consistently are a problem though. Now I know if I severely slow down my speech I can do pretty well. My friends and family can always tell when I'm having speech problems.
Cathi