Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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Shingles

chester
chester

anyone get the shingle virus while having mg? I got the virus 4 days ago , the rash isn't too bad for pain but I am getting abdominal cramps.cannot sleep. Started taking voltrex and dilaudid but the cramps persist. Any advice would be great. Thanks

Nanosecond
Nanosecond
Chester, often gabapentin (Neurontin) is prescribed for shingles pain. If your Dr prescribes it, proceed with caution. Gabapentin made my ability to swallow worse.
throstle53
throstle53
I was diagnosed with MG just over 3 years ago. In late summer last year I had shingles, mildly. After 2 weeks
it eased, although I still feel twinges now and again, where the rash broke out.
I get all sorts of stomach problems when taking Mestinon, and to be frank I do not think it does anything to improve my MG.

Now again I stop the Mestinon, and take Huperzine A. Although I am not so sure this does anything, but at least I do not get the stomach problems, and I only take one per day.

Think I will stop taking this type of tablet altogether for a while. and just keep to the 7.5 mg of Pred and Cellcept( 2 grams per day )

I am also trying Low Dose Naltrexone. This is a very puzzling condition and I am willing to try anything to minimise its impact
chuckie1
chuckie1
you need something like lyraca which deals with nerve pain. I had it and the V.A. Did Not KNow what I Had it sucked I had to tell them I had Nerve Pain!!
Good Luck
Chuck