Yea bright light sometimes bother me. If I am having a bad day dimm lights are less strenuous on me. I am more sensitive to everything. I am allergic to animals. I am noticing that is worse now too.
Any and everything that impacted me before is multiplied and worse for me since MG
I hope you are adjusting a bit without your partner. I bet you really miss your friend.
Ann

I do have heightened sensitivity but it is intermittent. Was his? It could have been migraine...that is what it is for me. At first, I had "silent" migraines which are migraine without the headache but with the aura. So, I would have the light sensitivity and nausea but no headache. It took a couple of years to diagnose because there was no headache with them for a long time. I sometimes would have smell sensitivity or sound sensitivity too.

My daughter has MG too and has a keen sense of smell and migraines too that began with her onset of MG which confused the doctors.

So sorry to hear about the loss of your partner...debra

First diagnosis for me, was ocular MG, slowly became generalized.
I have to wear sunglasses - inside the house!
A beam of light, or even a reflection, that shines directly, in my unprotected eyes?
That's all they wrote, folks - for that day.
Can't see - worth a hoot.
Needless to say, I shade my eyes, very carefully.

Thanks for the replies and kind comments. Artchick- I am not sure if it was intermittent or not. He would just make comments occassionally about the lights or some detergent and I never thought anything much. Now in hindsight I wonder if these things were MG related. Now you say it, he did get very irritable if I vacuumed for too long or accidentally banged a plate in the kitchen. Seemed to be also sensitive to noise.

I would have loved to have had a diagnosis. If I knew then what I do now I could have been so much more understanding and sympathetic.

I can't stand vacuuming, and have to wear sunglasses always. Florescent lights are the WORST.

Oh WOW!! The more I read and learn about MG the more I wonder how long I have had it. I have been sensitive to chemical odors for a long time.And bright lights bother my eyes. I have transitional glasses but they are not dark enough. I thought and maybe it is, something else. Just allergic to stuff. I am allergic to some food. have been since birth.MG is so complicated that unless one gets tested for all these things, how can a person know if it is a MG symptom or something else.
I have learned to live with many things because I do not want to take pharmaceuticals. Most of them I have a bad reaction to. I do use herbal supplements.

Sounds like plates, glass or metal dropping or clanging pierce my ears, when others don't notice.

Light too and reflections can be worse than regular light,very bad. People look at my reactions to this like Im a bit loose in the head but it is horrible for me.

I never relized this may be MG realted...

Do people with MG have more acute hearing? I remember my first visit to the neuro and one of the things he did was rub his fingers or click his fingers by my ear and wanted to know if I heard that. I do not remember all the other things but that one for some reason stands out in my mind. I told some friends and they could not hear what I could hear. I thought, they probably have hearing loss from having things on too loud. But now I wonder.......................

Wow, very interesting thread. I, too, have acute sensitivities. Because of my poor vision, I need bright 100 watt bulbs in most lamps in order to see clearly (or close to clear). But any type of reflections or direct bright lights, like headlights, are terrible. Odors are a major issue for me. I smell things no one else does even though I always have allergic rhinitis. And the stronger those smells, the worse it is, sometimes making me feel nauseous. Sounds, like clanking plates, make me hit the roof! When my kids unload the dishwasher I try not to be in the room. It's like a gong in my head & my vision goes black for an instant when they bang 2 dishes together. I, too, am allergic to everything from foods to dust to penicillin.

I would think there are different factors as far as these "sensitivities" go. Age could be a factor...Just allergies in general, which can increase with age. I really have no known allergies forthemostpart at this time. Later down the road, who knows?

I am in my late 30's, and I had issues with sunlight and possibly brighter lights(mainly direct sunlight) when my MG wasn't being treated and was progressing. My eyes in particular hated the sun, and made things worse. Perhaps I was more sensitive to chemicals also. Although, I know I did swim in the pool without much of a problem as it relates to Chlorine. I will be 40 next year, and since I have been improving, these are no longer factors for me. I wouldn't discount chemicals for me or anyone with MG, but I don't seem to get any more irritated than pre-mg when I smell them or detergents/soaps for that matter. We need the sun, everybody does. Let's not avoid it.

So, I believe this is an individual thing.

People are gluten sensitive, with or without MG, and so on...

Best wishes,

TJ

If we consider that an allergic reaction to a food, medication or chemical is basically our immune systems over reacting and we have an autoimmune disorder in which our immune systems are in hyperdrive it all starts to make more sense.

Good point catnap!

Funny to hear this from others---when I am having a really bad day I always lie down and cover my head with pillows--I become sensitive to both noise and light. And the past few months I have been going crazy with this new laundry detergent my husband bought--I keep complaining that all I can smell is chlorine in my clothes and blankets. I should mention that I am also in remission at this point.

Intersting to hear about the sensitivity to noise. About six or seven months ago, shortly before I developed MG symptoms, I bought some ear plugs becase the noise (they call it music) in the gym was irritating me. I thought I was just getting less tolerant of junk music or that they had turned up the volume or something. Perhaps it was the first indication of the MG coming on. I have given up the ear plugs lately at about the same time as I have moved into remission.Until reading your comments I had not connected the issues and had just thought I was getting used to the junk music.

I have not noticed any effects on other senses though.

I can't believe we are having this discussion. I have always had allergies to cats and dogs but this holiday I react even to people whose clothes have touched the dogs. who were kept in the garage for me. I was much worse than ever with itchy face and runny nose and itchy eyes. Animal gone and I am getting better. Christmas Eve animals were at Christmas eve and MG was bad. And I can't believe what you are writing about noise. Last night my husband dropped a fork anf I about shot through the roof.
This is crazy.
Ann