Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Medicare will cover a hospital bed rental -- but you have to have a prescription from a doctor for it. When my Dad needed one, I found a used one on Craigslist that was motorized for around $100. It worked well and he could raise and lower various parts with a button.
Are you taking Mestinon? That can be the cause of secretions.
You can change to a full face cpap mask that will work with mouth breathing. It is worth trying one to see how it works. Again, you need a doctor's prescription to get it through Medicare.
Which really brings us to discussing all of this with your doctor as he or she is the gateway to alternate devices as well as to adjusting medications that might help.
Good Luck
I also know what you mean about sliding off of the wedge. I fixed that by putting another wedge under my knees but I don't have a recliner so it would be just like you are in that still. I wonder if some type of non-slip fabric might help with that... I'll have to think on that for a bit. lol
I have to do the same thing each morning by coughing up everything in the morning. It is a nasty thing but completely necessary. I have also noticed that because of my weak face muscles the C-PAP mask doesn't fit my face as well as it could. I currently use a small mask but I'm wondering if I might need a child mask to reduce the surface area of it. I'm thinking the smallest surface possible would cut down on the leakage and I could get a better seal, but that's just a theory.
Hugs and Aloha!