Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
hey guys so recently i realized that ive been having other speech problems, aside from the slurring. Lately ive been running out of breath while talking. Like I cant even talk in more than one sentence anymore. It would literally feel like i cant breath while talking so i have to stop and take a deep breath. Though its not always like this, most of the time its when my mestinon is wearing off but other times its just random which sucks because I cant even finish a story that I want to tell.
is anyone having the same problems? it only started happening this month, ive never had this problem before.
Anytime we notice symptoms getting worse, that means our underlying MG is not controlled, and likely is progressing. These warning signs are not just to take more mestinon, but to make sure we are being treated to reverse the neuromuscular junction damage.
Taking more mestinon will likely work to help with the symptoms, but only to a point, and then we too often crash very hard.
You can read what other's have said over the past 8 years by doing a google site search. Here is one that may be helpful to you.
https://www.google.com/search?q=breath+talking+site%3Awww.dailystrength.org%2Fgroup%2Fmyasthenia-gravis&rlz=1CAACAG_enUS656US656&oq=breath+talking+site%3Awww.dailystrength.org%2Fgroup%2Fmyasthenia-gravis&aqs=chrome..69i57.16365j0j4&sourceid=chrome&ie=UTF-8#q=breath+talking+myasthenia+site:www.dailystrength.org
Good luck, and remember, if you symptoms are getting worse, you really need to be pro-active--report to your doctor and get your treatment adjusted. MG is not one of those diseases where you can wait to see if the problem goes away.
Russ