Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I want to offer all of you some hope. I am 63 years old and am in full remission. All of the materials I had read said that older people don't go into remission-that only young people ever experience remission. Well, I am here to prove that to be false.
Since I haven't been on for quite a while there are so may of you that are new and so you don't know about me. I'll give you a very quick review of my mg history.
My mg was so bad that the doctor told me that it was totally out of control. I was on prednisone, mestinon, imuron, and cellcept. I had been given ivig, plasmapheresis, and another treatment (I can't remember it's name) that is usually used for cancer patients in their chemotherapy treatment. The doctor told me that this last treatment was the last resort-that if it didn't work there was nothing left to try to get my mg under control. Well, it didn;t work. I was in the hospital 6 times in just one year due to having an mg crisis. I was on oxygen 24 hours a day, couldn't walk, and could barely eat.
Last fall I started feeling better and am now in full remission. I take no medication for the mg what so ever. I lost all of the weight (and then some) that I had gained from taking the prednisone. The only problem I have to deal with as a result of the mg and all of the medication is diabetes. A small price to pay to be free of all of the problems that go along with the mg and the medicines for mg.
Even on your worst days, always keep hope that some day you too will experience the joy of remission. I pray for all of you that God will bless you with remission.
Since I haven't been on for quite a while there are so may of you that are new and so you don't know about me. I'll give you a very quick review of my mg history.
My mg was so bad that the doctor told me that it was totally out of control. I was on prednisone, mestinon, imuron, and cellcept. I had been given ivig, plasmapheresis, and another treatment (I can't remember it's name) that is usually used for cancer patients in their chemotherapy treatment. The doctor told me that this last treatment was the last resort-that if it didn't work there was nothing left to try to get my mg under control. Well, it didn;t work. I was in the hospital 6 times in just one year due to having an mg crisis. I was on oxygen 24 hours a day, couldn't walk, and could barely eat.
Last fall I started feeling better and am now in full remission. I take no medication for the mg what so ever. I lost all of the weight (and then some) that I had gained from taking the prednisone. The only problem I have to deal with as a result of the mg and all of the medication is diabetes. A small price to pay to be free of all of the problems that go along with the mg and the medicines for mg.
Even on your worst days, always keep hope that some day you too will experience the joy of remission. I pray for all of you that God will bless you with remission.
I hope with the weight loss and avoiding those wonderful carrot cakes you bake, :-) that your diabetes, too will be a less and less of a problem.
Wishing you well every day.
b.
I was on oxygen for a full year. With the mestinon I have been able to wean off even the night time oxygen.
Thanks for sharing your story and also "hello" as I am one of the new ones here and we have not met. Marie
Be well,
We were there with you when you struggled and we are here with you now...Celebrating and appreciating your remission.
Thank you for sharing your great news!
TJ
Wonderful news Alone. Continued good health.
Larissa ;)
Enjoy this time :):):)