Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I do good at adapting, not so good on common sense.
Some days, like all of us, I do too much. Like most of us it takes me 2 - 3 days to recover from 1 day of overdoing. I end up in bed, knowing I knew better. Super woman doesn't give up her cape easily.
We need each other. When one is weak, lets prop each other up. Next week it might be me. In the short time in the group I have learned something from each of you.. We don't all react the same. This is a most unpredictable disease. We all deal in our own way.
Take care my friends, have a great new week.
Some days, like all of us, I do too much. Like most of us it takes me 2 - 3 days to recover from 1 day of overdoing. I end up in bed, knowing I knew better. Super woman doesn't give up her cape easily.
We need each other. When one is weak, lets prop each other up. Next week it might be me. In the short time in the group I have learned something from each of you.. We don't all react the same. This is a most unpredictable disease. We all deal in our own way.
Take care my friends, have a great new week.
Now I have the extra issue of blood clots and being on oxygen and having to judge activity and oxygen levels and I have to say there are days I go a bit too far. Trying to get a handle on the new mix of things to consider and adapt. Gardening this spring is going to be an interesting activity but I still plan to do some in spite of it all. Knowing when to ask for help and how to adapt for activities will be the name of the game and frequent resting.
Barbel I think we all need headsets so we don't have to hold phones and then we just have to take enough meds to have the voice support! Heres to adapation.....as Dee has so well pointed out.....a necessary tool fo all of us.
Good luck jvobrien with the tests. They are best when behind us.
Maureen sounds like you have a cape in your suitcase already....Don't forget they have wheelchairs at the airports!
Hugs to all, Marie
As you just said there is a price to pay at times and today like some of you is my day lol . I spent the last day and half gardening , planting , mulching etc and well , lets just say I'm a little fatigued today. I thought of this before I started much like Maureen did with her traveling week but continued anyway. Some days I give in , most days I just go at it as that alone can mentally exhaust us all lol.
Never give up..Cj