Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Good Evening Everyone! Saying "Hello" from Toronto! Hope all is well with everyone and that these days will be easier on all of us! I met with the Thoracic Surgeon today who advised me that a Partial Sternotomy would be the best recourse for my Thymoma and Myasthenia Gravis. After reading the Patient Information to prepare me for the surgery and after reading some dialogue on Daily Strength from 6 years ago.... I think I have completely terrified myself! Does anyone have any new information or input to date??? Or even any advise on which way to go? The tumour is pretty tiny they say. It's 1.5 cm. But the effects of Myasthenia Gravis is difficult to cope as it has affected the muscles surrounding my lungs. So difficulty breathing, weakness, fatigue are the daily challenges. The Thoracic Surgeon suggests this surgery to rid of any worsening in my condition..... This is easy to agree on.... but the surgery itself seems complicated and quite major??? Can the tumour and myasthenia gravis ever correct itself with the help of holistic remedies or eating to beat myasthenia gravis??? The doctors never think that that is the way to go. But a part of me wants to postpone the surgery and to try to eat right and live healthier.... Will that even help???
I am basma i thought my experience might help you since i have my thymectomy on the 18th of September 2016 that is less than a month ago
My thymus was normal but i had a relapse that was not responding to any treatment including mestinon, imuran, perdnisone 60 mg, IVIG and plasmapheresis
So the surgeons suggested removing my thymus and i said if it would help even by 1% I'm ready for it and i did
The first few days after surgery are not very easy but can managed by pain medications,for me the bone is healing very slowly since i am on prednisone 60 mg now and on rituximab infusion which suppresses my immunity but after saying all that i would say it was still worth having the surgery since it gives me hope of better life ahead
My advice to you is to go ahead and do it now if the doctors think you can tolerate surgery
Better than waiting and having to do it later when your lungs might not tolerate anesthesia and extubation might be difficult after surgery
I hope the information i gave you was of help
I think of it like people walking up to someone with ALS and saying, "You just need to do some yoga and learn how to breathe deeply!"
It may look complicated and fussy... but once you get your routine grocery shopping going... you'll find that you will have these ingredients in your cupboards and refrigerator and it would be easy to just whip up.
Here is one of them:
Green Detox Smoothie
(Serves 2)
This smoothie will help you to detoxify your body, break free from constant sugar cravings and start each day full of energy.
Ingredients
2 cups of water (or more if you prefer thin smoothies)
3 medium bananas, fresh or frozen
1 small orange, peeled and roughly chopped
½ small grapefruit, peeled and roughly chopped (optional, if you like a bitter undertone)
2 tsp. of maca powder
2 tsp. of chia seeds or hemp seeds (optional)
2 large handfuls of spinach
1 large handful of kale (or extra spinach)
Instructions
Combine water, banana, orange, grapefruit, Maca and chia seeds in a high-speed blender. Blend until smooth. Add spinach and kale. Blend again.
I hope they work for you too! Enjoy! Let me know how it goes!
Take Care,
Abby.