I have a lot of pain in my leg muscles, and yes I'm 55 and feel like I'm much older. When I go from a sitting position I steady myself and then start moving. Once I'm up, I walk very well. I can walk at a pretty good pace and feel strong unless the ground under my feet is uneven or curbs are involved. I do rely on my husband for safety or use a cane if I go out by myself just for security. If I walk any distance at all, I end up with really bad leg and foot cramps later in the day or at night. I have read from other posts that this is common among MG patients.

Hi TeraHug! Welcome to the group. I haven't posted in a while but I felt the need to reply to your questions. Those with MG often have other complicating conditions that are thought to be closely related and commonly co-exist with MG. I read in your other post that you also have fibromyalgia and I do also. I've talked to MANY neurologists and other doctors that always say that MG does not cause pain directly. However, much like when you have a really hard workout muscles that are strained due to weakness can become sore and even very painful.

Have you been tested for other auto-immune diseases or conditions? I ask this because apparently those of us with MG tend to hoard them as though they were priceless antiques.

You may also have arthritis or even gout (a form of arthritis) in your joints. It would be wise to speak with your regular doctor and see what they think about a consult with a rheumatologist. It might be off base but you never know. I'm only 42 and I have MG, Fibromyalgia, Gout, Autoimmune thyroid disease, chronic fatigue and believed to have an unidentifiable form of Lupus. I have everything from canes to wheelchairs already and you just never know what is going on inside of your body. It's better to be safe than sorry though. I would definitely have as much checked out as you can tolerate. Please try not to let yourself get to the point where you are shaking and feel like you are going to pass out. Stop yourself while you still have the energy to get to a safe place where there is someone available to help you. Trying to push through things can be our undoing. When you least expect it you can lose control and not have the strength to get the help you need. I've gotten stuck that way in grocery stores, work and outings in somewhat remote places. That is super scary and I hope others will learn from my mistakes. Since this is so new to you right now you don't really understand your own limitations. Trust your gut though and watch your symptoms because they don't lie. Always stop while you are ahead. You can always go back to whatever you were doing once you've gotten the rest that you need.

I hope that you are learning lots of stuff from all the great people here. They've saved many a worried mind and never hesitate to give you whatever information they have.

Good luck to you and please keep us posted on your status. Hugs!
Angie

Thank you, Tcndy2523 and ahpotts72 for commenting, it seems that I learn something new about MG every day. I had no idea that MG didn't cause pain, but as you mentioned, ahpotts72, I have arthritis but don't know anything about gout, I am hypothyroid since 2006.

You really brought a huge smile to my face with your comment, "Those of us with MG tend to hoard auto-immune diseases like they were priceless antiques." Hope you don't mind but I am saving that one to use in the future they don't make em better...LOL.

I will talk to my doctor about seeing a rheumatologist. I have thought of using a cane to help myself feel more secure but wasn't sure, I think it is a good idea, as I really don't want to fall. TCndy2523 I get cramps all the time but not just in my feet in legs, also in my rib cage area, they are so bad sometimes that I feel like a freight truck hit me. I have been diagnosed with chronic fatigue, but that is as far as it went. Thanks again for commenting, as I said, I have learned so much from this group and I am so thankful that I found you all!

Ask about having a blood sedimentation test. One of the autoimmune diseases is polymyalgia rheumatica (PMR) that sometimes accompanies MG. If this test is positive it can mean PMR. Usually you see a rheumatologist first.

Mom had it, and a friend just got diagnosed and treated. He said one day he just hurt in every joint. His immune system went on the attack to the joints.

The treatment is prednisone so if you are already taking prednisone--then it is not likely PMR

Good Luck

thank you for the suggestion, I will talk to my doctor about seeing a rheumatologist. At this time I am not taking anything, not even for MG as I was just diagnosed last week and don't have another appointment until the 24th of this month. I have been making a list of symptoms that I am experiencing and of questions I have for him, just hoping I can get something to help with all that is going on at this time. I truly appreciate all the responses I get here as you don't obtain this information by simply reading up on this disorder. Thanks again.