Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
1terrier
Firstly I am so glad you are feeling so happy! I know you've been through a rough patch recently.
My answer is YES. I think my emotional and mental attitude does make a difference to my MG and more importantly how I cope with it.
Some days I do feel down (I join the others in having my pity parties) but I try really hard to remind myself what I have to be grateful for. I have a wonderful family who keep me balanced and bring love and laughter into my life.
Having said all that I do believe happiness depends on ourselves so I hope you don't mind me saying to be cautious about relying on someone else to bring you happiness. I'm not saying that's what you're doing just look after yourself first!
I wish you much happiness and hope your MG continues to improve.
Best wishes
Gez
Enjoy and glad to hear.
Ann
Glad to hear you are doing this well!
On the same note. I dont think just being really happy will keep the symptoms away. I was hit with all this durring one of the happiest times in my life, and physically healthiest/active.
I know when Im really struggleing with my symptoms and can laugh with family and friends it helps me deal with it.
However, what could be more hopeful is that you may be going into the "burnt out" phase of MG. The literature shows that a high percentage of people get a reduction in symproms after about 10 years. Sometimes it can gradually go away all together. Lets hope that is what you are experiencing. Only time will tell.
It seems like emotions can alter my physical state some but not entirely.
Ann
I think the biggest "feel better" change I have had recently was back in March, before MG diagnosis--but I did have it then. I had a knee replacement and got oxycodone for pain--boy did that do a number on me--felt like singing "Zippity doo dah, Zippity Yeah, Oh what a wonderful day..." while on it. I ended up switching to another pain killer as I didn't really like my emotions being jerked around so much.
However, I do remember those early days of falling in love and the euphoria that came with it-so enjoy it for as long as you can! Getting married and living with a spouse long term seems to diminish things slightly ;-)
I don't know if the feelings I have are love or not. I know they are strong, and the way she treats me is just so different compared to what I'm used to. I'm used to everyone making me feel inferior to them, because of being sick. My friends have a bad habit of that even though I know they are just trying to be nice. I let it go, as making a deal out of it only increases it.
With my stbx, 100% that, I was a child that made a mess according to her own words. If you were to ask her, I was a helpless person, that had to be waited on hand and foot 24/7. This wasn't the case, but that is what she did regardless.
So maybe it is love, maybe not, but whatever it is, I will do my best to keep a hold of it. I like the feeling that I'm not helpless anymore, and that I can overcome my shortfalls with this disease. She makes me feel like I could be productive again, instead of just being this sick dude behind the computer screen.
http://www.hy-q.com/cooper/pdf/NCS%20Exam/114%20Clinical%20Evaluation%20and%20Management%20of%20Myasthenia%20Gravis.pdf
The link is to one of the most often quoted papers on MG. If you look on page 491 under Clinical Couse of Myasthenia Gravis, in the third paragraph it mentions the "burnt out" period in which symptoms gradually decrease.
Gwyn