I was just recently diagnosed with it, and I have had it for 4 weeks. When I got muscle weakness in my legs they hospitalized me for testing for generalized MG too. I just started for a week on pyridostigmine 60mg 4 times a day. What is your treatment and how long have you had it. I fortunately don't have very noticable droopy eye lids. I just have double vision and my right eye is off center.

Yes there is hope. I will write more when I get home from work.

yes I have just Ocular MG, take 2x60mg mestinon 4xday, helps but still have flare ups of bad days of double vision.

Go out to the MG site "www.myasthenia.org" They have information on ocular MG and the possibility of it progressing to genelized MG.

sorry... I have Ocular and generalized... very bad droopy eyes and double vision... much luck to you, Annette

Sorry my boss was circling my desk at work. I was diagnosed in June. Am taking 90 mg of Mestinon every four hours. Was taking 30 mg of Prednisone. I was on a trip in August and ate prime rib and my energy went from 1 to 9 that evening. I had not been on a healthy diet.

I started eating a healthy diet in August. I also added one cup of coffee in the morning. We lowered my Prednisone to 20 mg and I continued with the healthy diet. Both eyes have been opened since the middle of September.

I don't know if it was the protein and healthy diet or caffeine plus medication.

I never had double vision but had some weird color shows while trying to type at work. The top half of the type looked orange while the bottom was red. The whole type should have looked red.

thank you everyone ... i have had it for about 15 years and have never been able to get rid of the double vision or droopy lids

So sorry. What medication have you tried?

LastBestC, I have the same symtoms as you do, what did they do to diagnose you. I am just wondering why they are dragging their feet. So far they have only done the blood test and of course it was seronegavtive. I have every symptom that you do. I hope they don't wait years to put a diagnosis on what is already here. I want them to keep it from getting worse.

Carla, sometimes you just have to beg for a trial of mestinon. If you don't respond, that does not mean that you don't have myasthenia, but if you do respond that is diagnostic. There is already some question among your docs regarding whether or not you have MG, so I would hope it wouldn't take too much arm twisting, b.

I was diagnosed about 2 months ago with ocular MG. it started with double vision and I was given mestinon. It worked for a couple weeks, but then it stopped and I got the droopy eye too. My doctor put me on prednisone and it seemed to help immensely. In still juggling a times as to take the meds, and I have diarrhea every day.

I was diagnosed about 2 months ago with ocular MG. it started with double vision and I was given mestinon. It worked for a couple weeks, but then it stopped and I got the droopy eye too. My doctor put me on prednisone and it seemed to help immensely. In still juggling a times as to take the meds, and I have diarrhea every day. .

Lomital can help with the diarrhea. I hv to take it. The mestidon and pred tear apart my stomach

Hello fellow MGer, I have a hard time with mestinon 60-90 mg 4x's a day as needed and prednisone 20 mg once daily. The medication was tearing my stomach apart. My neuro recommended Zantac over the counter first, but ended up giving my prescription strength 150 mg twice a day which seems to help most of the time. You might want to ask you neuro for medication to coat your stomach.
Good luch and Happy Holidays !!!

Yes my friend, it does go away. If you are in remission. Hope your doctor did mention that there is hope in the form of remission.
I know it recurs too but there is always a chance of it disappearing for a while...till ofcourse we stress ourselves beyond repair and call in for an emergency.
Destinon/Mestinon, Cellcept, Omnicotaryl are all there to help, yet at the end of the day its our mind set, our internal power that makes it all fade away.
Thinking positive, accepting the issue at hand, letting go off things, deep breathing, meditation and staying happy as also food and nutrition being some of the things that play a key role.