Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Not coping well....is seriously an understatement.
It's only been a month, and feels like a forever since mg dx. This weekend pushed me over. I have been fighting...denying...whatever you want to call it my dx. I've been having such a hard time wrapping my mind around it. So much so I had started the predinose, out of fear of my issues.
Friday morning I found myself struggling to take a breathe. Laying on my bedroom floor using all the strength I had to just breath in and out, while tears flooded my face. I just couldn't believe I was that incredibly weak. How did this happen? No strength or air to call out for help, my mind rushing with thoughts. Just months before I would work hours into the night on our home remodeling after working 9 days at the office. I still don't understand this. Seems like it's all happened so fast.
Obviously I'm taking the predinose now. Yesterday I had an uncharacteristic outburst of screaming and crying and wonder if I'm losing it completely. How do you cope? I want my old personality and body back. I keep telling myself things will get better, yet so far they've only seemed to have gotten worse.
It's only been a month, and feels like a forever since mg dx. This weekend pushed me over. I have been fighting...denying...whatever you want to call it my dx. I've been having such a hard time wrapping my mind around it. So much so I had started the predinose, out of fear of my issues.
Friday morning I found myself struggling to take a breathe. Laying on my bedroom floor using all the strength I had to just breath in and out, while tears flooded my face. I just couldn't believe I was that incredibly weak. How did this happen? No strength or air to call out for help, my mind rushing with thoughts. Just months before I would work hours into the night on our home remodeling after working 9 days at the office. I still don't understand this. Seems like it's all happened so fast.
Obviously I'm taking the predinose now. Yesterday I had an uncharacteristic outburst of screaming and crying and wonder if I'm losing it completely. How do you cope? I want my old personality and body back. I keep telling myself things will get better, yet so far they've only seemed to have gotten worse.
Clark
We do understand you, so come here and vent, talk and cry. Moment to moment. It will get better, but the beginning is the toughest. Try not to do too much, as you need all the rest you can get.
Wellness,
I hope you have a good Neurologist. If you live in small town, find a Neurologist in a large town with Medical Center that specializes in MG.
Your suffering seems extreme. It will get better with the right medication and care.
Most of us had a terrible time getting to the right medication for ourselves. Just don't change any of your medications because something works for us, may not work for you.
This site is to encourage one another not to change what your medical doctor's advice and care. Remember they are the experts.
Know we all care
Dee