Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Ten years ago I found when I got a bit unstable and off balance. I found a rubber neck supporter helped me stay grounded and it allowed me to feel safer if I drove or walked alot. This summer I had a relapse and a back supporter is helping me to use other parts of my body more which makes walking and daily living better. Need to figure out something that works with less support because I don't want my muscles to get weaker because I use the support. I have also found that even a scarf gives my neck muscles the bit of stimulation that helps.This morning I wrapped a large scarf around my torso and that seems to help too. Any thoughts?????
i am sure lots of us have back problem such from osteoparesis, and other problems
i have that problem and have purchasse a corrective back , support, that works
if you look on the net,just type FULL BACK CORRECTIVE BRASSE, and look thru
the one i add purchassed is from THE NATURAL PORTURE CORRECTION, for about $30.00, beleive me it does the job, as i use it only partialy when i do work aroiund and have to bend continuosly
ot is light weight, and unconbresome
best of luck , stay well
Andre
My strategy when I was worst was to sit in a chair with a large headrest and let my head be supported that way. Then when I actually wanted to do something, I used a lot of mestinon 30 minutes before to get me through a few hours. I put my Tv so it was high on the wall, and even my computer screen was so I could rest my head back and see it with the keyboard on my lap.
I think this is the time when you get the medical system involved and let them help you figure it out.
If you do it that way, often the cost of the supports and helps are covered by insurance.
My wife has back/neck issues, not from MG. She visited with her doctor, got to see a specialist and then got a prescription for some support aids and they were covered by medicare that way. Where she goes, the Mayo Clinic Store, the folks were very knowledgeable about everything and what would work best and it was at no cost with the prescription.
There are variations on cervical collars that may be helpful.
This website has some basic strategies for daily living with myasthenia
https://www.myastheniagravis.org/life-with-mg/save-your-strength/
Good Luck
Russ