Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I was diagnosed about one and a half years ago with an ACR of 13.4. It said critical. If the number is no indication of the severity, why would Dr. have me take test again? The results were lower, but Dr. says still positive.
My symptoms have never really worsened beyond slurred speech.
My symptoms have never really worsened beyond slurred speech.
I have read that within an individual, an drop of 50% level is usually correlated with a person improving, but that is not clear.
I asked about ongoing testing as I was taking medicine hoping the tests would show if I was getting better, but my neuro said how I feel is the real test.
I asked for a retest after I went into full med free remission and my neuro said I could still test positive even without symptoms, and taking the test and finding it positive might depress me (it probably would have).
Good Luck