Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
welcome to the group, and please allow me to make some corrections to your blog.
i want to make very clear they are no cure for mg. only remission, it is easy for all of us to fall into beleive charlatans which prey on our good faith and fall into unscrululos people to get money not cures or solutions.
mg can only be controled by having a good neuro with good relation with the patient and patient control
i am a firm beliver in naturals meds, but this desease as others are no to be fulled by taken naturals,
natural are made to compliment but not take over,
i have mg since 2011, 79 yrs, young, had 3 relapse sice, andd now in full remission.
you can control your mg, but you will need the help of a good neuro, whom understand mg. and his willing to have extented conversation whith you in regard of your meds and control
this situation will cause you , stress when it will fail, and despair, those 2 items are very detrimental to mg( actually the worst enemy), so please be careful,
best of luck (fighter)
If you have myasthenia gravis, please seek help from a reputable neurologist, preferably a specialist in myasthenia gravis.
I am totally suspicious of the post from Kathvenery which has all the marks of a scam. The English is generally very poor and whoever posted it also referenced the person 'cured' to the name of the person posting the thread.!
It should be removed from the forum as being unacceptable.
However, I will note that there is something that is real -- the placebo effect. In almost any test of a placebo (sugar pill) vs no drug at all, almost 1/3 of folks report improvement with the placebo. Something to do with our minds thinking something will work making it so.
There was a research study where I worked about praying for folks after heart surgery. If the patient knew he/she was being prayed for they seemed to do better, whereas if they didn't know they didn't do any better than controls who were not prayed for.
So, maybe if you think something is going to help, it may just do that! And so I don't dismiss folks who say some diet or vitamin made them feel better. However, rather than buying the very expensive treatments from places like the one listed in the post, you might suggest to your doctor you would like to explore the placebo effect!
Russ