Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I still have no diagnosis by a neurologist but am prescribed mestinon and predisone - both help. But I have extremely tight muscles, muscle pain, spasms, twitches and at times buring skin sensation. Also have developed small lumps over my muscles... When I was first out of work in Sept 2015 I had NO muscle pain or tightness. I was just weak. Use a computer for a few minutes and my eyes would get very weak with double vision... I would go to a large store and halfway through shopping start wallking funny. But after sitting in the car riding home - I would be walking normal again... But the neurologist I was seeing would not move beyond the idea that it was all mental health... Also had autoimmune thyroid isssues flairing... I complained that my neck was so weak I felt I could not hold up my head, So I was sent to PT to strengthen my neck muscles. Was like torture and caused severe headaches. Also began to notice large muscle knots in the back of my neck... Anyhow I had to keep working and all as I had no help from doctors. I now have severe muscle knots/tightness all over. I go to PT just for some help relaxing some muscle. All the muscles that are painful and tight are those that I overused. The calf muscles that look huge and ache and twitch - are the ones used to lift the foot. My headahces are due to muscle spasms... in my neck, jaw... PT and the doctor who prescibes medications say that I overworked muscles due to weakness and variable weakness making my muscles not work in coordiation. I know this is true but all of these weird symptoms for so long make me scared at times and I think the worst. I know I pushed my muscles because I rememer days I could barely lift my head up off the pillow but I still went to work. My kness have muscle knots over the top - PT thinks it is because I lock my knees so they do not buckle. Does anyone else have these same severe muscle problems? Everything says there is no pain with MG. If I push myself - when I finally lay down and rest my muscles ping/twitch as they try to relax. I try to stay positive and not scared but I am. And have been for close to three years. Am common antibody and EMG negative. Neurologists I have seen have told me I can not have MG because my eyelids do not droop correctly... But basically I have been labled as crazy and each neuro just follows the last ones lead. I have no chance at these appointments. Their mind is made up before they even meet me..
Good Luck
Russ
I had obvious MG symptoms for over 20 years but went undiagnosed because I am seronegative and also negative on regular EMG. It wasn't until I found a specialist in MG that I was absolutely diagnosed through single fiber EMG. I am a woman, and maybe it is coincidence, but the female doctors I have seen never suggested that my symptoms are psychosomatic. I was feeling as if I were a Rorschach test for male doctors' issues with women.
If your thyroid is out of whack, that could make you feel terrible - and depressed and anxious as well. Also if you do have MG, being hyper or hypothyroid will make MG symptoms worse.
Hope This Helps
Chuck
also have them check your sodium or just eat food that has some salt in it.
Hope this helps
Chuck
also have them check your sodium or just eat food that has some salt in it. Cramps come from lactic acid build up in your musels.
Hope this helps
Chuck
Your symptoms sound almost exactly like mine. I am hopefully having a single fiber EMG soon. I do get muscle stiffness and jerks. I do respond to Mestinon but I do not yet have a diagnosis. Good luck and please keep me posted of your progress and diagnosis.