Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
The last several weeks my MG has been worse. More tired, clumsy, Bobble head etc. Also I have these one-off muscle ticks. All over. Though I have noticed significantly more in and around my eyes, mouth and face area. No MG ocular symptoms. Not painful, more like twitches but they don't last very long and are subtle. My tremors have increased and I seem to have more of a brain fog and more difficulty concentrating.
I called the neurologist today but they have yet to contact me back.
I have had a cold and some stress. Had a lipoma removed from my shoulder about 3 weeks or so ago. They gave antibiotics intravenously the day of the surgery and I took only 1 pain pill the evening of the surgery. Just Tylenol a couple of times since then.
Ideas?
Kimber
I called the neurologist today but they have yet to contact me back.
I have had a cold and some stress. Had a lipoma removed from my shoulder about 3 weeks or so ago. They gave antibiotics intravenously the day of the surgery and I took only 1 pain pill the evening of the surgery. Just Tylenol a couple of times since then.
Ideas?
Kimber
So I see how stress could do this too. I know it's a bit backwards from most but
If i know I have a andrenaline type of thing comming up emotional or physical, I have a 2 hour mestinon window to clear before I go into it.
or
Im a twitching mess!
I'm also having (only over the past few days) what I can only describe as an internal cold shiver. Like that creepy goose bump feeling on your skin. But it feels like it starts in the muscle nearest the bone working it's way out toward the skin but never makes it to the surface. Is that totally weird?
Kimber
No one knows your symptoms, better than you.
Whether it involves - higher Mestinon dosages?
Or it involves - lower Mestinon dosages.
Like MG?
Mestinon tolerance - seems a very individual thing
- Ross
BUT I had twitching of a variety of muscles several years before diagnosis.
Before I had a diagnosis I had prism glasses and as my eyes adjusted to each change in prism or even just an eye exam my eyes would twitch and water. I have always considered the twitching part of the MG but maybe I am wrong....
I too have the cold shivers--usually on my left thigh then sometimes down the right side of my head. Weird.
The twitches seem to be somewhat reduced. The "shivers" have definitely reduced. Sunday I rested. The only thing I did was water the sod in the front lawn and move the sprinkler around in the back. The body felt better but the brain not so much so. I know I shouldn't feel guilty or bad about laying around but I just can't get around it. Still tired though. I have several small projects that I am going to try and do but I will have muscle help. Other than that I will try and take it easy some more. Feels like just sitting at the keyboard makes me tired. Normally when I am on here I am using a tablet that I can have with me in bed or on the couch.
Lojos - glad to hear that we aren't completely unique in that aspect. Wonder if we were both over doing it?
Kimber