Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hello. I have a new concern. I have felt bad a lot of the day today. I just layed down and I am feeling a lot of muscles moving in my stomach, thighs, chest and face. Like flutters or worm movement, sorry idk how to explain it. Does anyone have any idea about this? Thank you. I do hope yal have a great weedend.
That's better, now we know what you're taking (med-wise) OK so, you've started the transition to long-term control of your MG albeit the Prednisone seems fairly low, at just 5mg, little more than a maintenance dose. You should find that as the Imuran kicks in, the need for Mestinon will reduce as the MG comes more under control. The fact that you're getting cramps is possibly a sign of that. - talk with your Neurologist and ask him/her?
Thank you so much for your post ! I am new here , I have the same problem . Flutters under the skin, twitching. I have been completely anxious about the disease that should not be named. I am s single mom of 4 kids and I have cried myself to sleep with these thoughts. I’m glad I am not the only one with these twitches . I am not yet on any medication, I am still a “possible case “but waiting on lab results . I do believe it’s mg related. I can’t wait for a diagnosis ! I have been battling with this for over 4 years . Finally with ptosis on both eyes - hopefully diagnosis will come ..