Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Myasthenia Gravis Foundation of America, Inc came out today with the online MG Patient Registry. The web link is;
https://mgregistry.soph.uab.edu/MGRegistry/SignUp.aspx
When you open the web site you are provided terms and conditions, that define the scope of the program.
Hopefully this very first MG patient registry will prove to lead to better research, diagnosis and treatment.
Bruce
https://mgregistry.soph.uab.edu/MGRegistry/SignUp.aspx
When you open the web site you are provided terms and conditions, that define the scope of the program.
Hopefully this very first MG patient registry will prove to lead to better research, diagnosis and treatment.
Bruce
For those who have registered already, the first follow-up survey should be coming out shortly.
For those who haven't registered, please consider registering! The hope/expectation is that the registry will help move forward MG research significantly.