Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I got diagnosed in Oct 2011. I have been on only Mestinon since then. I was taking some arthritis meds but we felt they could have been interfering with the MG so I stopped. I recently started Robinul to deal with the stomach issues that the Mestinon was causing. My general strength has increased since diagnosis but fatigue and other issues have kicked in.
I have also been having problems with balance, fine motor skills and more recently vision and mental acuity. All of that being said, I have been going through a battery of tests at Veterans Administration that will be completed with an MRI on Monday and a follow up with the neuro on Tuesday.
A couple of weeks ago I had a CT with contrast and results did not show a thymoma or an enlarged thymus. Today's nearly 4 hour battery of tests was a mental assessment (because of memory problems). Results showed an above average intelligence and capability and results lowering as MG/fatigue began to set in. I was also showing signs of lapse in concentration. The final test was a dexterity test that charted me in the 30 percentile range. I was also very tired by then.
The final theory is that as MG gets worse and fatigue sets in the mental acuity and concentration tends to go which can look like minor memory loss.
So do any of you have problems with mental acuity when MG kicks in? Not just a little fuzzy when tired but real lapses in concentration and difficulty remembering.
Kimber
I have also been having problems with balance, fine motor skills and more recently vision and mental acuity. All of that being said, I have been going through a battery of tests at Veterans Administration that will be completed with an MRI on Monday and a follow up with the neuro on Tuesday.
A couple of weeks ago I had a CT with contrast and results did not show a thymoma or an enlarged thymus. Today's nearly 4 hour battery of tests was a mental assessment (because of memory problems). Results showed an above average intelligence and capability and results lowering as MG/fatigue began to set in. I was also showing signs of lapse in concentration. The final test was a dexterity test that charted me in the 30 percentile range. I was also very tired by then.
The final theory is that as MG gets worse and fatigue sets in the mental acuity and concentration tends to go which can look like minor memory loss.
So do any of you have problems with mental acuity when MG kicks in? Not just a little fuzzy when tired but real lapses in concentration and difficulty remembering.
Kimber
That's what gets me! When I am feeling better I don't seem to have the brain thing. Even my friends notice. When I start feeling the MG kick in then I start seeing the brain symptoms. When I rest and feel better the brain kicks back in. The only time I have a difficult time recovering the memories is when the incidents occurred while I was having worse MG symptoms. It does not seem to be mood related. I can be having a bad MG day and be moving along in a fairly good mood and still have the problems occur.
Kimber
I came home and was totally exhausted.John said to rest and read or watch TV.There was no way I could have done either due to brain fag so I slept.
Lorraine