I think if you are weak, then you definitely should wait to exercise. Exerting your body more than you need to won't help you recover.

Otherwise, exercise is fine! When I'm healthy, I can exercise almost every day. I actually feel a lot better when I'm able to exercise.

I would just be mindful of your body, and understand your limit. Don't try to push yourself too hard if your body can't handle it.

I try and go for a walk most days. If I am not up to it I don't go. Try and get to the gym a few times a week but again if I don't have the energy I don't push it. I do try and get some sort of exercise each day. I do not have real bad symptoms lately so I can do more. Over doing it can have make you very sick so listen to your body and don't over do.
AL

Ranay my docs keep telling me to wait to exercise. It wipes me out and then I can do almost nothing for days. My heart SO wants to exercise, but right now, my body is laughing at the idea--literally laughing! UGH! It's taken me a year to feel fairly comfortable with knowing what this "new normal" looks and feels like.

I think you should use caution with exercise, especially since you are newly diagnosed and need to learn your body's signals that it is about to crash ( if you indeed ever experience a crash). Maybe others can offer a more informed opinion.

It's good to see you reaching out. This forum offers tremendous support.

I walk an hour a day. I recommend it.

I try to walk every day. I'm not a fanatic about it and I don't walk too fast. A nice relaxing walk that gets my heart pumping a bit. Preferably outside and I take my phone with me so I can take pictures. I like to walk in a park nearby and they have lots of interesting things I can photograph. This gets me out of thinking about my MG too much which is stressful. I find daily exercise helps me to sleep better since now that I'm taking prednisone as well as mestinon my mind has a tendency to race.

When MG was at its worst for me, I barely could walk across the room without having breathing difficulties. In fact walking from the waiting room to the doctor's office was when I was hospitalized, I was having so much difficulty breathing, the doctor wheeled me to the ER and I spent the next few days as they kept adding more mestinon until I could function decently.

Generally the only real critical problem that can arise with exercise is with breathing (what we know as a crisis is a breathing problem). The rest of the problems are aches, tiredness, soreness, etc, but not as likely to put us in the ER, so we can tolerate a little of that as we try to be active. However breathing is what to really watch!!!!

I took a lot of Mestinon to make it so I could be somewhat active waiting for the Prednisone to kick in. When that happened, I could be as active as I chose. You get to know your body's response to whatever you do with MG and that helps you pace yourself. In the summer, I tried to keep up some activities and although the Mestinon let me do much of what I wanted to, it also left me wringing wet with sweat when I did stuff. I always brought along extra shirts to change.

If you are getting better, then you can do more. I scored my improvement by timing how far I could walk before I got out of breath, and as prednisone worked, I found I could walk as far as I wanted to eventually, even at a rapid pace without problems. At first it was a minute or two.

Moderation is the key to most things with MG. At one of the MG conferences, there was much emphasis on keeping active, even if it was only walking as often as possible for short distances. I suppose "use it or lose it" applies with MG too.

Good Luck

I could not exercise every time I tried I would go down for days. Finally started Aqua therapy ( exercising in the water) and I can feel the results from it. No strain on the body.

My son is 18 years old and was diagnosed at age 16. He was not able to exercise until his symptoms improved after his thymus was removed. He finds exercise therapeutic and goes to the gym nearly every day. His doctor always encouraged exercise. He lifts weights and does a little cardio. He never was a runner, but I'm happy to say he is out playing ice hockey as I write this which I never would have guessed two years ago. His MG just affects his eyes at this point. So I would say if you feel good, get out and exercise. Best of luck to you.

This is something that I have struggled with since my DX four years ago. I was fairly active and took 3-4 thirty minutes walks or bike rides each week. I can no longer move continuously for 30 minutes. I have looked at Senior Chair exercises at hasfit.com; however, I can not do the whole routine, not even the short 10 minute one. I can go shopping though and rest a lot. So, I think I am going to try walking and take my handy seat with me, and rest every 5 minutes. Walk 5 minutes, etc. Or, I might push my wheel chair, and rest in it. My neighbors might think I am crazy, but I don't care. :-) I really miss exercise the most. Keep trying and you will find something that fits you. We are all different. I marvel that some people who have MG can run and play tennis. Caution is to be used, and since our symptoms vary from day to day, we need to be careful and listen to our bodies. I jogged in place once for just 5 minutes, and I was completely down, and had to rest with no activity-- I could not even sit up in a chair for 2 days. I recently did the same thing except this time I cleaned my house--again I could not move for 2 days. Never give up!

Thank you everyone for. the responses. I have been trying to swim in our pool a little, I really am having a hard time doing anything outside because of the heat. I am newly diagnosed, so I am still figuring out my body and limits.
My neurologist is not an MG specialist, so I double check on everything he tells me.
Again thanks for the responses

Since heat/sun seems to do a #on mgers can you do whatever early am or evenings.