Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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Meston and time span

cassynchris
cassynchris
Hello everybody! My question is that my Nero started me on timespan at night. Last night was my first night. Well.... I always wake up around 4:30 am to feed my cats. I didn't wake up until 7:30 and my husband said they were try to wake me up at 4:30. I couldnt eat I could do anything I had to call out if work. Do you think the timespan had something to do with this. The day before I was doing ok. I have been having more weakness because I have been coming down on the prednisone. I don't think I want to take the timespan tonight because of the way I was feeling today. I am going to call my doctor tomorrow to see but I'm her only one she see.

Thanks for listening Cassy
deleted_user
deleted_user
Since there are two variables (tapering and Timespan), it seems difficult to isolate the source of the trouble. I never liked Timespan and preferred to wake up early to take Mestinon before sleeping a little longer. Could you try that until you can discuss this with your neuro? I have never experienced that with Timespan. Sorry for your hardship.
jen0517
jen0517
Hi, I've had one neuro who used Timespan and one who hated it and refused to use it.

It's hard to say what is causing your problems since you just started Timespan and are tapering prednisone at the same time. It might work better if you just tried one change at a time.

I hope you feel better soon. I know it is hard to wait to feel better. Hugs to you!
Jen
Bamboolilly
Bamboolilly
Timespan helped me greatly without side effects. I don't think the fatigue is related. When I was at my worst, it was difficult to wake up, or even turn over in bed. That said, overdosing Mestinon gives you MG symptoms too. You could skip it tonight, and set your alarm for regular Mestinon during the night. Then you'll have a better comparison of the variables.
Wellness,