Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Well folks I guess I should be thankful I had a great 21 years of Military service. The Mg took my lively hood they are letting me hang on till March. Today my leg gave out and I fell on my face It is hard when so many of my troops look up to me. My peers well its a ladder and they are climbing it. Its hard to type one of the bad days I guess. Thank u all I enjoy your insight and knowledge.
Are you getting treatment? MG can be controlled for most people.
MG is a tough one, and it yours right now. It's not easy as you know but we are trained to adapt and overcome. Frankly Matt that's what has given me the strenght to face each and every day and the treatments needed to stay ontop of MG.
I faced many challenges in the 'sandbox' in the early 90's (Desert Storm I), I have had to draw on those experiences to face up to this challenge.. This one does not go away after this tour is over, it's going to take a constant level of vigilance and commitment.
Your used to having men look up to you for leadership an guidance, it's your turn to listen to that same advice. I don't mean come across as calloused, but from what it sounds like you have the strength and discipline already, more importantly you have the strength and compassion of a good support group here. We are here for you Matt and we are here for each other.
You know what commitment is, you know how to face challenges, we are here for you no matter what.
Welcome to the group, I certainly gain strength from all of your experiences.
You certainly have not messed up my friend.
Joe
I'd give you the speech about one door closing and another opening but you know all of this.
I wish I could reach through the computer and give you a big hug. Sending you a virtual hug instead.
-sherry
First of all Thank you for your service.
All I can say is rest on days like this to have the strength to fight it another day.
And as Joe said, Adapt and overcome.
Jerry
You gave that to your men and your country for 21 years..Sir you have paid your dues in full....you owe no one anything...the principals and lessons you taught your men are lessons for life, it's time for you to take care of yourself...you know how, you've taught others, you have all the support you'll need from those here...and we will learn from your leadership in this group I'm sure of that.
I only ended up a light colonel, mostly academic in the end, but like you I know what it takes to get it done, those were not just words for your men, they are for you, for your life, all of it, each and every moment of it.
Thank you honestly and sincerely for your service, it's an honor to get to know you here.
You have what it takes. I look forward to your posts and success stories
Joe
I have a very dear friend that was just forced out of the navy after almost 30 years in. He didn't get Master Chief so they told him that it was the end of the road. That was almost a year ago and it was very difficult and depressing for him. Stay busy though. An resting mind is a wasting mind. Try not to sit around and sulk for too long. It will "eat you up" as my friend said.
Do you have a plan? An idea about what career you will go into? Do you have a degree? All of these things will be what you need to focus on between now and March. I know it doesn't seem like a blessing but having several months to prepare is indeed a blessing.
Good luck to you. I know that you will do well but we are always here for you when you need us.
Hugs and Aloha,
Angie
Please take the time to look into a secondary insurance as well. It will give you more option availability for treatment going forward.
Best of luck. Stay connected.
Larissa
I am glad you found us, and for sharing. I so thank you for your service. I know it is and will be tough, I always say keep on keepin on.
Rest, take care!
Big hugs from Texas,
Annette
I hope you will eventually find medication that suits your MG profile.
Good Luck with this new journey.
Here is a good place to start :)
Calmday
Welcome to the group!
Sorry to hear what's happening to you.
It's nothing you did.
As newmugg said, MG doesn't play fair.
There is good support here, because at least we understand what's going on. On the other hand, MG is really almost unknown in the general public.
While we do all have a lot in common, because of MG?
There are lots of variations in symptoms, from person to person.
Myself - I've been through a lot of different therapies.
Right now, a combination of Rituxan/Rituximab, IVIG, and Prednisone - is working for me.
My Neuro believes it's the Rituxan in particular, that's doing the heavy-lifting. (Rituxan is seeing more and more use, all the time - against many autoimmune conditions.)
Congratulations! And Thank-You for your 21-years of Service!
- Ross