Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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Mental Issues

krbunn
krbunn
Have any of you experienced mental issues with your MG?. Not emotional or forgetting issues, but cognitive or slight personality changes.Thanks --Kerry
krbunn
krbunn
Thanks for all the replies. It is good to know I am not alone.

I have been in touch with my doctors. They think the mental issues are a combination of medications too. It has been a couple of months since my thymectomy and we are now reducing some medications including prednisone. Yes! I hope this helps.

As ya'll know, prednisone works wonders but can devastate one's body. Among other things, it has caused problems with my testosterone level (extremely low) and I am on testosterone injections now. This could be causing some mental issues as well.

I have posted about my headaches in the past. My Vanderbilt neurologist, Dr. Lee, arranged an appointment with a headache neurologist for me. My headaches are due to occipital nerve neuralgia. The occipital nerve comes out of the spine, divides, then exits through the bottom of the skull through small openings on the right and left. The occipital nerves then go up the back (where my headaches are), top, and side of the head.

Traditional headache treatments are not that effective in stopping occipital headaches. Duh! So what is the treatment? An occipital nerve block. Yes, an injection of a nerve blocking agent into the two small openings on the right and left of the bottom of the skull where the occipital nerves come through.

Guess what I had done yesterday (6/4)? That's right. Two occipital nerve blocks. One in each side. My head is numb . . . I am a blockhead, but its not the first time.
limpnoodle
limpnoodle
My mental sharpness definitely coordinates with my level of weakness. When my body is weak, my brain is too.
newmugg
newmugg
Hope the nerve blocks do the trick Kerry! You are a medical wonder...you have those top notch Vanderbilt doctors scratching their heads and wondering "What can we do" :-)))
I am thankful you have amazing doctors!

I admire your attitude and fortitude and am always cheering you on. Thank you for sharing your advice and journey with us!

Hugs,
Sherry
deleted_user
deleted_user
I needed a smile today and you gave it to me with your blockhead remark. :). Thanks Kerry All the best to you and your continuing journey toward wellness.