Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hello everyone!
I was diagnosed with Myasthenia Gravis six years ago when I was still in high school. I was considered a rare oddity in the hospital because of my situation. My symptoms progressed over a few days as apposed to a few years all thanks to a lovely cold!
I was lucky enough to go into remission the same year I was diagnosed thankfully, but I have some fears that further medical complications are arising which stem from my now forever corrupt immune system. I was wondering how often it is that other people with MG suffer from future thyroid issues, as that's what I am betting on. My neurologist told me that I could have thyroid issues in the future, but my mother also has Graves disease which has all the perks of hyperthyroidism and it's genetic as well.
For the past 2-3 years I have been suffering from weird heart beats, hand tremors, shortness of breath, tiredness, bloated and puffiness, anxiety, my body doesn't handle changes in temperature very well, fast degrading eyesight, menstrual cycle complications and more, and from what I can tell from the trusty google, I have the same symptoms present in Graves Disease and also Hyperthyroidism. I am seeing a specialist about this, tomorrow actually I go back. But I just want to know how often it is that people have complication later on down the track. I know that I have the twice as lucky thing going on, considering the MG and genetic factors, but I am just so curious!
I was diagnosed with Myasthenia Gravis six years ago when I was still in high school. I was considered a rare oddity in the hospital because of my situation. My symptoms progressed over a few days as apposed to a few years all thanks to a lovely cold!
I was lucky enough to go into remission the same year I was diagnosed thankfully, but I have some fears that further medical complications are arising which stem from my now forever corrupt immune system. I was wondering how often it is that other people with MG suffer from future thyroid issues, as that's what I am betting on. My neurologist told me that I could have thyroid issues in the future, but my mother also has Graves disease which has all the perks of hyperthyroidism and it's genetic as well.
For the past 2-3 years I have been suffering from weird heart beats, hand tremors, shortness of breath, tiredness, bloated and puffiness, anxiety, my body doesn't handle changes in temperature very well, fast degrading eyesight, menstrual cycle complications and more, and from what I can tell from the trusty google, I have the same symptoms present in Graves Disease and also Hyperthyroidism. I am seeing a specialist about this, tomorrow actually I go back. But I just want to know how often it is that people have complication later on down the track. I know that I have the twice as lucky thing going on, considering the MG and genetic factors, but I am just so curious!
You could have Graves. It is familial. My brother has it, but I drew the hypo card. I had thyroiditis with multinodular goiter, and it stopped working long before I had it removed. The thing is, you can have hyperthyroid while your thyroid is struggling, and then end up being hypo. That's kind of like its dying breaths. I had a lot of episodes of hyperthyroidism before my thyroid finally deserted me.
I had the thyroid problems before I had a myasthenia and blamed all my symptoms on that until it became apparent there was more going on than just thyroid.
Hope you get it figured out soon and get treated.
Lisa
Welcome to the group! Hope you find help and support here. We are a friendly bunch of MG'ers.
MG is complicated because it is so often accompanied by other immune system problems and conditions. The diagnosis is difficult for teasing out all of these and getting a treatment plan that works for everything.
That said, many of us get this figured out reasonably well and get on with life and do well.
Good Luck and hope your doctors are persistent!