Elinora, I fully understand the use in situations like yours...pretty much the same rule applies as in most situations with medications. Risk versus benefit. I am very glad that you were able to use cannabis to help with your appetite and as always you are in my thoughts and prayers.

Joe

I see your point Elinora, I guess the whole smoking thing is front of mind for me with my lack of breathing "skills" right now. I see your point with doing what you gotta do when you gotta do it.... so let me rephrase my answer... NEVER SAY NEVER... one day it might look like the best idea in the world to me... best wishes to you...

To be sure, Joe and Maureen, as soon as I turned my eating around, I stopped using it. The high feeling detracted from the quality of my life. I did not think anyone was judging me but was explaining how someone like myself ended up using for a while. I made some pretty clear poins to my kids about why I had to use it. I am pro-legalization for both recreational and medical uses, but I prefer a clear mind. Love you guys and this forum.

Elinora I fully understand the clear mind issue. During the weeks in the hospital, I hated taking the pain meds after the surgery but did need them during that time. Just like with cannabis, you needed that for a time. Like Maureen says....never say never.

Best of wishes :-)

Joe

No judgment from me. If you think it helps you, go for it. If it helped with the loss of strength, I would be all over it myself. I am getting weaker daily. I walk like Arte Johnson from laughin. Thankfully,I don't have life threatening symptoms.
Don't know about lollipops ;) do know about brownies..
I am just an old hippie, live and let live. You go with what works for you, we all live with the consequences good and bad.
Peace out
Dee

My brother broke both arms smoking and riding horseback. Horse took advantage and bolted home for dinner.
I startled a young man as I was taking his stitches out by asking if he had been smoking before that motorcycle accident. He looked up at me with tired, bloodshot eyes.
Horse, motorcycle, car--smoking, get yourself a chauffeur or designated driver and walking across the street with MG, with or without MJ, is not always recommended either.

I remember Sesame Street--What happens next? Weight gain in elinor's situation would be a happy outcome. b.

A good discussion of the present knowledge about medicinal use of marijuana. Came with medscape today, but the link Joe found will take you to the original article. Thanks, Joe.

http://irishhealthcarerarediseasestarlovcyst.blogspot.com/2014/07/cannabis-in-pain-and-arthritis-look-at.html

b.

To b I'll make a note that I have not driven since January when I ended up in hospital for 11 days. Fentanyl patch for pain, which also worsens my MG. Marinol (THC), narcotics, and cannabis all greatly exacerbate my MG. Cannabis has great potential to help people, but unfortunately, like so many medications, it exacerbates MG. That is only my experience, but it would surprise me if research concluded it alleviated MG symptoms. One of my sons is the type who drank the koolaid and says "pot is good". To him, I tease that chemo is good and that he should try it. ;-) There is always a risk benefit thing when considering any medication. It's too bad that there is such a cultural bias against the drug, especially since it will be complicated to study it.

Hey guys!

Oh my gosh! I totally lost this post! Thank you for all your replys and input! Sorry to hear about your bad experience though Im still using and it seems to be going well. I stopped for an yr. and didnt see much of a difference. Ive been treated by the foremost myasthenia gravis expert (Dr. Sivak MD, Mount Sinai Manhattan) in the north west and he could not say he sees a negative effect aside from when its smoked its probably not good for the lungs. But thats just me and dont want anyone to do anything that could be unsafe, potentially. There truly isnt much information on cannabis and myasthenia gravis. For me personally its kind of a vice. Ive had to give a lot with disorder but this one thing I really would prefer not to. Now on that note, you do have to be a little careful about where it comes from especially if youre not a regular user. But with the way things are looking everyone can just grow their own soon. Also remember most people who grow it also smoke it so they dont want chemicals in just as much you dont. Trust me what the major food companys use on your food to grow it is way worse then what most cannabis growers use. Im considered to have a serious case of MG so Im limited a lot of the time and I think its great. Most of the hobbies that are available to me are very chill so goes perfectly. Its also very hard just to relax and rest sometimes when Im sick and unfortunately thats all I can do till I feel better. So its nice to have something to relax you and make you a little sleepy. If you guys come across any other information about MG and cannabis do share please! Thanks again for your time and support!!!

Kind regards,
AJ

Straight to the point here: I find it helps with the emotional stress and to sleep. Prednisone keeps me up all night, sometimes until 4am. I find that when I smoke I can sleep better, which is something us myasthenics need. The bad thing is you have to control your eating if you are on steroids like I am. It makes me laugh, it makes me happy. I tend to get easily depressed if I think too much about my condition so it does help. I do not do it every day, only when feeling extremely down and depressed. It my case it has been less damaging than drinking.

I just talked with my neuro on the 13th and he said he did not see any reason to do it or not to do it if but as for any benefits he did not see any.
Chuck

LUCERO777 quote: Prednisone keeps me up all night, sometimes until 4am.

Are you taking Prednisone 2x ED?

If so, from my research and doc there's little benefit to taking 2x ED (morning & night) versus 1 X ED (morning only). Talk with your doc, etc.. but switch to 1 X ED in the mornings and see if you can sleep better. I was initially asked to take it 2X ED but I switched and 1 xED works for me.