Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I wish I could help and hope you and your doctors figure this out.
"I saw three eye doctors, an Optician, Neuro Opthamologist, and a Retina Specialist. The only thing that was found was eye lid weakness (no optic neuritis)".
My eyesight is pretty bad. I am 20-400 or so. It seems like I can never find a good pair of glasses.
I discovered the wrinkles between my eyes were part of my MG and had the experience of my expression being misread as well. When my granddaughter said, "Don't frown at me, Bama," when I was just listening hard, time to pull out the stops. b.
That is half the battle sometimes! I have had the tingling and
tongue issues you describe along with eye droop and more.
MG can manifest in so many ways in each person.
I hope your MD finds a good way to help you manage your symptoms.
Carly