Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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Lightheadedness

grecogirl
grecogirl

I am experiencing lightheadedness for about a month now.  It seems worse in the morning, but if I take a Mestinon it seems to abate.  I feel off balance as well.  Since I had a fracture the day after Thanksgiving (elbow) I have not been the same and cannot seem to get back to where I was before that accident.  My right arm is still very weak and I am just out of sorts.  I went to the neuro and he said I need to adjust my prednisone, Mestinon.  I have been taking between 10, 20 and 25 mg of prednisone, and I don't know if I should go higher.  I am taking 1-3 Mestinon depending on how I feel or what I am doing.  I am a bit stronger but don't feel I am making very good progress. 



fihghter
fihghter
hello

sorry to hear your continous problems with light headed. it is not an easy unknown to deal with,

i have had episode as such, and the best way to control it is to up your mestidone to 180mgs dayli for about 3 weeks you should see some betterment in about 2 weeks

at the 3rd. week you should decease the amount to 120 mgs, for another 3 weeks then reduce again to 60 mgs one weeks then reduce to the minimum 30mgs.dayli

since i know how much you hate to take , this is the most secure and safe way to accomplish control.

also if you like i have written a post thsis week reated to stdies done in the university of philadelphia by dr, wenzel and levine
complete and deatil of all concerning to mg, good meds, bad meds ect
it is worth the time to look at it for all mg patients, russ has looked trhu and like the way it was written

best of luck (fighter)
grecogirl
grecogirl
Thank you for the reply. I read somewhere that Prednisone can cause LH, so I am trying to decease that, but again, still having weakness, so this is a mess to say the least. I was going along just great until I fell and then it has been a steady decline it seems. I will give the Mestinon increase a try and see how it goes.
PeterL
PeterL
Whilst I am one of the first to suggest that adjustment of Mestinon by the individual/patient is OK I would draw the line at suggesting a course of action to be taken by someone else in this respect. These things must be discussed with your Neurologist. There are no quick fixes where MG is concerned and there is always the ever-present danger of doing something that can tip the fine balance we live with. I've said it before. Be very, very careful what you do to yourself - there should only be two people advising you what to do regards medication. One is you and the other is your Doctor and when it comes to you - don't go it alone; the only thing you really know is how you feel when compared to yesterday.

Whilst the referred article was very good it has absolutely no bearing on your situation, other than perhaps the brief mention of Mestinon and the need to remove it from the patient when recovering (in hospital) from a crisis. You really do not want a crisis situation to develop.