Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
11 days ago i finally got my first shot.as well my wife to all concerns i cannot describe any easier injection, i expected some reactions to it because of my of my mg and thalassemia, but i can assure aside from a small bomp from the shot wich lasted only about 5 days, no other signs
one thing that i was carefull is to go certain that i was at the minimum meds that i can be 30mgs pyrystyganine(mestinon generic) and 5 mgs of predisone every other day. these are the most important fact to take in consideration
it is very important that before you get the shot, you must talk to your doctor in regard principaly if you take amuran, azathioprine,mysophenolate,methotrexte, as these meds are much diferent than prednisone and more dangerous as they are inmunosuppressants but are for organ transplants. so please very careful with your self, at this time do not lessing to anyone giving what you should take ONLY YOUR DOCTOR (NEURO CAN DO THATour doctors
monda i am going to get our second dose will let you know of my progress, luckili we where given phiser which i will trust totaly, some raetion may occure on some people that is because we all are different one fron the other, but in cases like we are going thru, we must trust our doctors and scientists
good luck to all and please be safe for your own life as well your loves ones
best of luck
Andre
Thanks for the update. Look forward to hearing how everything is going.
Best wishes.
TJ
good luck
Russ
thanks for your response, i will keep the updates as they be comming, hope for the best on my second shot
Andre
its allways heartbreakin to loose friend famili or people that you know, this virus as it shows in pictures is the most perfect beautifull specimen, but as we know the more beatifull the deadly they are.
hope you get your vaccine soon, and beleive me get on with our life on a different platform
i will let every body know how my second veccine evolves, what reaction i may have ect.. the more pwoplw will learn the better it will, be
best of luck
Andre
Shot area is a little sore -
While waiting, we were chatting with another patient who said he was not going to get the shot because he thought that the shot was a government plan to kill off us Vets.
Seems like there are lots of conspiracy theories out there.
Since there isn't a lot of data out there about how it effects MGers, I guess I am now a data point. :-)
Scott
thank for sharing your reservations, but hold and behold you are free of them now,you sore sptot will dissapear in about 5 days.
even do it is a new vaccine we cannot take for granted all the pros and agianst, but there is a time that reason must prevail and you done what is correct, for you your loved ones , friends and people you come in touch whit.
conspirasys theories are nothing but,something to talk with no sence or reason.
we know that there is very little data or none with regard of mg.. But is up to as the ones whom are getting the vaccine to convey all what we feel in our body, to provide our peers, the right information good or bad of what transcribes with our body.
with nobody forward theit results .the will not be helpfull so please anybody whom get the vaccine comunicate with all what your feel good or bad
this will be the trhu only way to have proper data
at this time i am also a data point. and glad to forward my pros and cons , but one thing i want make certain that you understand, THERE IS NOTHIBH TO BE AFRAID AND PREVENT YOU FROM GETTING THIS VACCINE
best of luck to you scott and all of you
Andre
I agree the vaccination is certainly our best hope. Thank you for letting us know that you did fine with it.
I think I will be on schedule to get mine in March. And I certainly encourage everyone to get it.
Good luck
Russ
the second will be for me the prooff of the putting,to clearify what is going on with it, since they are some talk in regard of the second from pfiser
best of luck
Andre
thanks for the info. you now are another point of data, let us know your reactions if any, and the second shot.
i beleive that the slight headache may have come from interaction from other meds. as for the sore arm ,that is commun with vaccines it will be gone in about 3 to 5 days.
please when you gat your second let us know how you are progressing as it is very important, for aknoleging a date base, thus people to will not be so learry to get their vaccine
Best of luck
Andre
There have been deaths, blood disorders, and a plethora of adverse reactions including Bell's Palsy and plenty of others. No thanks but I am glad we can share our experiences here and I wish everyone best health and strength. I know this all is scary to older people especially. You can check my other posts here for info and anyone can search for the info. This concoction isn't really a vaccine by the definition and I could go into this a lot more but we all have choices in life. Peace.
TJ
i respect your decision entirely. the choice is yours and your family.
at this time it is no longer an experiment, our bodies can adapt to allmost anything, but at this time why jeopardize it ??
i know perfectly they have been a number of daths and problems as it is whit all meds and vaccines, it will take time to sort thru them.
for me i was going to wait a longer time but as a married man , as she was inform to take it. i cound not say no and put her in jeopardy, we are in our 80s and both with health complications
me the worst, as i am avery high risk for cov19, so i took it i explained that every thing is ok, and tomorrow is my second.
i belive that some of these deaths are results not deribed from mg. but due to meds taken, underlying ddeseases not defined and others, this is why it is imperative to talk to our neuros and put cards on the table in regard of meds taken, principaly drugs that they where made for organs transplant and others that will be a problem with this vaccine.
now to the vaccines, i was lucky to get pfiser, which beetwen all i thrust the most, better on performance . more stable, than all others.
as i say before i respect your desition, as i respect everybody choices
will let you know moday how it is going
Best ot luck
Andre