Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
If you over due too much- it does spill into the next couple days.
Why? I don't know.
The good old spoons idea helps this make more sence to me.
We have to learn not to over spend our spoons or borrow from the next days.
Maybe your your doc should know if this is a worsening problem.
Hope you get some rest now and feel stronger soon.
Jeannie
Theresa
I am like Jeannie. Sometimes I over do and have problems right away. Other times I know I'm over doing it but I am pretty much okay. Then the next day or two I pay for it.
I'm not capable of any sustained physical effort. The only way I can get anything done - is by taking frequent breaks.
It's true, my mind says ''git 'er done''. Then, I realize? I've ended up in the ER twice - just for vacuuming! Sheesh. (Talk about no good deed - goes unpunished.)
I'll work at something, 5-minutes or so. Then take a break, for 5 or 10-minutes. As I go along, the breaks get longer and longer.
Beyond easier 10 to 20-minute chores? Which can take me, all day? It can also take me, many days to finish simple fix-it chores. Days & days - for chores that used to take - no more than 2-hours, tops, including beer-breaks! (All of this, really rankles a former house-framer.)
With me? Sure, MG is a big part of the problem. But the PNH-syndrome I have, that accompanies the MG? It is just as big a problem.
I learned for the first time, this past week: a 1950s medical-phrase that describes this PNH-syndrome: stiff-limb-syndrome.
I don't think I have: true stiff-limb-syndrome, it is very rare.
(Then, so is MG and its cousins.) And the symptoms don't match-up, exactly. (Stiff-limb-syndrome is a very progressive autoimmune-syndrome.) But the general-description of the symptoms - matches what happens with me, with any physical-effort.
Always something, huh?
Maybe I'm just allergic to work, period?
But glad to have something new, to talk over with Neuro.
- Ross
PS: I can see it now, years into the future. Ross has finally keeled-over. The super-duper CSI forensic pathologist says: ''Well, look at that! Yup - his wife was right! He was just allergic to work!''
Anyhow, this is a very frustrating disease in the fact that it takes so much energy out of you. I usually set out my day with all these things to do and sometimes i'm lucky if I get one thing done. Its worse if I have to work the weekend because then there is very little time to rest. I always feel if I'm not doing something I'm missing out. Especially when it comes to my family. II don't want to miss the ballgames or the gymnastics so I force myself to go to those. Just the other day my son, who's 8, pointed out that I don't go to church as much anymore. I usually stay at home, so I can rest a bit more before work. I agree with everyone else. its important to find a balance.
Larissa