So I have been informed by my spouse that all the information he has read says that people who are treated... go on to live normal lives... perhaps that is true.. but.... i was diagnosed in December, have not had a "good day" in weeks, my voice slurs, my vision is off.. basically i am so.. "not myself" .....I had to take several extended business trips by myself which caused me to be more scared than i have ever been. Granted, nothing major happened during those trips but the distance from home and the fact that i spent most of my days pretending i am ok because its work and they pay me right?That is really is exhausting..... Having MG is not only the most awkwardly uncomfortable thing thats ever happened to me, i am also finding it very lonely. The muscle issues, the mystery drugs that might work, might not work, all depends... that stuff i can deal with but... the fact that my spouse wants me to "send him links to where all this gloom and doom is" really is annoying. All he needs to do is look at me and see the gloom and doom. For a master computer guy he cant see that this disease is ruining his wife???? Is this the new life i have to look forward to? I suppose I will need to put on my big girl pants and find a way to trudge forward without the understanding support of my family, clearly they dont get how Crappy this thing makes you feel. I know it gets old to hear about but when you are sickly, which lets face it is how MG makes me feel, its kind of like the only thing going on in the world.... I cant focus on much else and when i reach out for help, although I will admit to being more than difficult on occasion, the reality is, no one knows how this side of the coin feels and if they care... well thats another post.. but to say.. people lead normal lives.. perhaps they do.. but so far this chick has not had the privilege....

thanks for listening to my rant...