Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hello everyone,
My name is Joy. I was diagnosed 12 days ago with MG. Started with double vision, weakness in my lips and then arms and legs. I'm having a very hard time , I have 3 children. Youngest is 6 months. I guess I am just seeking some hope here, my neurologist says to give the steroids another week to kick in and I will be able to see ok again. I will feel better,.... is this true? I'm not sleeping for over a week now, I figured because of the steroids and just general anxiety over the diagnosis. Any suggestions on sleep? Any hope on remission? How long can it take for symptoms to get better ? & Does everyone else feel as crazy as I do taking steroids,.. I have so many questions. Anyone willing to share some hope and strength ,..insight .. knowledge. .. anything ?
Thank you
Eventually, I relapsed again and begin taking prednisone along with mestinon. It took a good two months to get adjusted to it. It was trial and error. I begin with 40 mg of prednisone a day and worked down the dosage under doctor orders. Eventually I was down to 20 mg a day and was able to stabilize.
Every 3-4 years I have a relapse but its usually triggered by high stress levels because stress throws your cortisone levels off severely and is a big trigger.
Your meds depend on your body because each of us react different. I would recommend seeing an internal medecine doctor along with a neurologist to monitor your body reactions and dosage. For the double vision I use an eye patch. You have to also have a good support system to help keep you calm and your stress low. Light exercise helps build your body back up. It will be a challenge until you get a little stronger. Prednisone makes me sweat a lot and I have restless nights a lot. Garlic pills usually get me through the night or melatonin pills. If you need to rest dont be afraid.