I was just diagnosed 3 weeks ago. At 1st I was really relieved. I still am very relieved and excited to start to feel better. I just started on testimony 3x a day. At 1st I felt better. Now I feel like Mestinon is like a morphine drip. I take it, feel relief for a while and then out of nowhere, BOOM, I get hit by a train, repeat cycle. My arms feel like they are going to fall off, my legs feel like they have 20lb weights on them and I feel like a bobble head.
I spoke with my Neuro and she cut my mestinon in half. After reading several of the other posts, I know I'm in for a long journey. I'm trying to educated myself. I know what MG is now and what the textbooks say it is. I see the symptoms they list. I still feel alone. I still feel crazy. I feel like a failure. How did y'all cope.
I've been with my boyfriend for 2 yrs in September and I really thought he would ask me to marry him by now. We've discussed it and he says that's what he wants too, but I can't help feeling that it will never actually happen. I went through hell and back with my 2 1/2yr old daughter keeping her from her father and finally got sole custody. He's been there since she was 9 months old and she calls...
Due to an increase in cholesterol from my latest Lipid test, my cardiologist wants me to start a statin. Since that is contraindicated for MG patiebnts, does anyone know what else would help. I have read about niacin, or fish oil, elimination of saturated fats and trans fats, exercise etc. Any help appreciated. Thanks, ranna