Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Can anyone tell me how long it takes to start feeling better from the ivig treatments? It has been 11 days since I had the first half and 7 days since the 2nd half. The doctor combined the 5 daily treatments into just 2 treatments. The reason there is a 4 day gap between the 1st and 2nd treatment was because when I went in the next day for the 2nd treatment I was having so much trouble breathing the doctor sent me to the emergency room.
Since the treatments I have only gotten worse. Is this typical? Does the condition get worse before it starts getting better?
Since the treatments I have only gotten worse. Is this typical? Does the condition get worse before it starts getting better?
Sorry you are having a tough time of it. Like you I definatey get worse before I get better. The IVIG can take up to 2 weeks to kick in especialy if your disease is alread advanced as yours sounds so don't be despondent. Just also remember that some batches of IVIG just don't work and I hope that's not the problem. If you are still having trouble breathing though I would suggest you speak to your neuro. Perhaps you need plasma exchange to get you over the worst of it or even more IVIG? Wishing you better health.
Ange