Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I used to get IVIG treatments, and the nurses at my infusion center were explaining to me that your veins can get "overused" and can collapse during treatments.
The obvious pro the having a line of any kind in is that you don't have to worry about getting stuck several times. 8 times sounds pretty excessive so the line might be a good consideration. If the line is like mine, it will be easy to maintain. They're placed under your skin so there's barely anything sticking out.
The con is working around the line i.e. if it's placed in an area where it's hard to shower. There's also the risk of infection but if you keep it dry for the most part and have the dressing changed regularly then you shouldn't have any problems.
I hope any of that helped, and I wish you the best of luck in your decision making process!
Had to be flushed weekly with heparin but different areas of country do things differentlt. My phersis center took 1 hr for treatment but used the permacath only. I guess it depends on who ,what and where!! Find your state support group online on mgfa.com. perhaps you'll find people who can help answer local issues. Good luck
The down side is that I scar easily so it left a scar when they put it in and an even bigger one when they took it out 4 years later. I am of a slim frame of body [no meat on my chest], so my port was very obvious which made it easy for nurses, but was easy for anyone else to see if I wore just a t-shirt. Because of having IVIG two days, I also kept the port accessed overnight and had to tape it up for the night.
Overall, I would recommend getting the port if IVIG is longterm. It really was not a bother having it in and it was great not to be continuously stuck while they hunt for veins. Also, you might not scar like I did [keloids].
Hope you do well.
It sure is better than the many tunneled catheters I've had in the past.
The scar is very minimal, but I'm at a point in my life where comfort trumps appearance. Some surgeons are now placing implanted ports along the upper rib cage now for cosmetic purposes.
I've always been warned about infection, but in 3+ years have never had one.
Good luck in your decision, but I also think 8 sticks is a bit much to have to tolerate. And it's probably because of scarring due to being accessed so much.