Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hello Friends, I feel like I'm being so annoying to you and I am sorry. But I'm trying to understand how this works and what to expect.
What I've read on other sites and from my own experience at diagnosis I recall some symptoms improving while others worsening while on 60mg of prednisone. I'm thinking improvement much slower with this ocular flare since I started only at 10mg and only at 40 now after 3 weeks.
Is this typical with the course of treatment of prednisone? Mestinon not working on diplopia past two days so feeling like why bother with it and the over eating to take it. But then others say it worked after a few months. I don't get how something that leaves your system can start working after weeks or months. I wondering if the course of the disease changed which made the mestinon more effective??? I dunno. Trying to understand so I can start healing. Thank you all again
What I've read on other sites and from my own experience at diagnosis I recall some symptoms improving while others worsening while on 60mg of prednisone. I'm thinking improvement much slower with this ocular flare since I started only at 10mg and only at 40 now after 3 weeks.
Is this typical with the course of treatment of prednisone? Mestinon not working on diplopia past two days so feeling like why bother with it and the over eating to take it. But then others say it worked after a few months. I don't get how something that leaves your system can start working after weeks or months. I wondering if the course of the disease changed which made the mestinon more effective??? I dunno. Trying to understand so I can start healing. Thank you all again
Predinsone is the other way in that it can take months for the results to show. Prednisone does work quickly in your body to slow down the immune system producing bad antibodies (in a week or so it can change the production). However, the antibodies already in your body can persist before disappearing, and since the antibodies can have damaged our muscle receptors, they have to grow back.
That said, your first time being treated where you started at 60 and took it is probably the fastest way to see prednisone effects. Lower doses may slow but now stop the immune system from producing bad antibodies.
I took prednisone for about 6 months gradually increasing the dose to 60 before it worked for me. During that time I took lots of mestinon (60 mg pills every 3 hours during the day ) to cope with MG problems. The mestinon helped some with the double vision, but did not get rid of it. Prednisone did.
Good Luck
--Kerry