Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
When you ask about MG symptoms, it is difficult to say as everyone experiences MG in different ways along with some common problems. I never got nausea from MG, however I got it from the medications I took. We do get headaches and neck pains and other pains as we do things to compensate for weak muscles. I can't remember hearing anyone describe a feeling like someone pulling down on my face. What I did have is muscles too weak to hold my eyelids open and sometimes to chew or even smile. MG usually means our muscles tire rapidly, and so if you are trying to smile, and it is difficult, that could be from MG.
Hope you get a diagnosis soon and hope it is something less than MG.
Good Luck
Russ
I am sero-negative for MG, have droopy right eye and blurred vision, arm weakness (when not taking Pyridostigmine), positive single nerve fiber test and I am responding to medication they have started me on (prednisone and Pyridostigmine). Also swallowing difficulty sometimes (no choking! I chew more slowly now! More tests next week which include MRI of chest and lung function test.
A work in progress .... Some days are better than others. I had the flu last 2 weeks and ended up with shortness of breath .... scary! It did pass ...
I would appreciate input from others .... how do I know when I should present to ER?
Another question regarding medications .... in early weeks ... has anyone had fingers and feet/toe pain? I have not read anything online.
Thank you everyone for posting stuff ... it is reassuring.
Busybee