Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

1,709 Members
7,414 Posts
0 Online
Muscles & Bones
/ Myasthenia Gravis Support Group

Is Imuran even working?

alianazli
alianazli

Neuro had me on 20mg Prednisone but my symptoms flared up and had to stop it. I now take 10mg and its been 7 months since I have been taking 10mg prednisone. My neuro then started my Imuran I take 2 and a half pill daily in the morning and its been 6 months. But my symptoms are not under control. I can walk and talk but don't feel much strenght like I had before the disease.I also take 4 tab mestinon in a day.



I am severely depressed because of that, my sleeping routine is messed up.



can anyone recommend me a night sleeping pill that doesn't interfere with my mg? and doesn't make it worse. I really need a good night sleep and wake up feeling fresh.



I also want to start depression medicine but they seem to make my mg worse. Is there any Depression medicine that doesn't interfere with my mg?



Kindly respond.

Rhanson
Rhanson
Sorry to hear you are having problems with MG and sleep. At high doses of prednisone I couldn't sleep, but lower doses didn't affect it too much. I had sleep apnea, and so getting a cpap breathing machine helped a great deal.
This forum has been around something like 10 years. You can search it to find what other people have discussed in the past. The search on the page is not too good, and only goes back a couple of years. So you can do a "site" search that looks for the words you want.
A site search is in this format -- the key words followed by the website address in form site:website for example copy this line into your browser
Sleep problems myasthenia site:www.dailystrength.org
and it will bring up all of the discussions (clicking this link should take you there too).

https://www.google.com/search?q=Sleep+problems+myasthenia+site%3Awww.dailystrength.org&oq=Sleep+problems+myasthenia+site%3Awww.dailystrength.org&aqs=chrome..69i57.1571j0j7&sourceid=chrome&ie=UTF-8

good luck
Russ
alianazli
alianazli
Thank you I will check it for sure.
MGgotme
MGgotme
At first prednisone worsens MG symptoms, then it starts to lessen MG symptoms. Prednisone saved my life. At my worst I was taking 100mg a day. I gained 50lbs.
Hang in there! After tweaking your meds, treatments and life style you will be under control!
Frank MG since 2001.