I did not know Venus Williams was diagnosed with Sjgrens syndrome. What a terrible deal for her. Of course, we all fully appreciate what invisible illnesses can do to your body.

It's a gift to have places like this to communicate with others who are going through our invisible illness. Personally I don't know anyone who really understands, including the doctors, what we all deal with daily.
Thank you.

Thank you so much for passing this article along. I have sent it to my family so that hopefully they can understand a little better. I have isolated myself so I don't have to explain.

loved the article!! I sooo feel that way with everyone around me (except husband and kids). and of course the wondeful MG supoort friends!!! Thanks a bunch! Helped to remind me I not alone!!

Thanks for sharing. What a great article! Barbel

Loved the article so thanks for sharing the link. Wonder where you can get the badge that was displayed on the website... might make one for myself and see what people say!

Jules ---we could make a mint:}

Thanks for the article, and I have already shared the link with some others. A couple of years before I was diagnosed, I went through the same agony that many others did about if I was really sick, just being a bum, or was it in my head? Finally, I went to my present neurologist who specializes in MG, and she told me on the first day that I have the "but you look good disease". It made all the difference in the world. I also get tired of explaining to people what MG is, so I have started just telling casual askers that I have "a form of Muscular Dystrophy". They recognize that name and it seems to satisfy them. MG is listed on the MD website as a part of the disease.

Because I am fairly young and am forced to use a cane or scootie a lot people often look at me as if I am scamming or unusually say "well when your foot gets better". I don't even have anything indicative of a foot injury! Because they can't see it and I look young enough to be healthy people make assumptions or think you are scamming for government (and a lot of people are now a days). It is so frustrating.

Because of the stares and comments I had a sign made for my scootie. (I added the pic to my profile.) Now, maybe a shirt.
Kimber

Perfect! A great reminder for some, and new information for others (especially for this time of year).
Thank you for sharing this! I am posting it on my facebook page! :)

I need to post this link so every one I know can read it cause nobody understands all of a sudden after 36 yrs I'm just lazy and making excuses, I hate it and its really frustrating

Kimber, you made me laugh!
"unusually say "well when your foot gets better". I don't even have anything indicative of a foot injury!"

You know what's so funny? My mom is on crutches, and we have a handful of neighbors that keep asking her how her shoulder is doing! You really have to wonder what goes through people's heads (or doesn't!).

skidoomt, thanks for posting this, it helps so much. I thought now that I probably have MG it would be easier to deal with people but I swear it's even harder. Glad to know I'm not alone in it. Nobody understands the variability of MG, not even me. And then there are those that say "Oh now you know what it is, they can cure it." ...uh...

Walking with a cane, last night I got "what happened to your hip?" (Huh?)

And after I told someone I am awaiting my medical discharge from the military because I have a neuro-muscular disease he said "You should stay in 30 years!" (Maybe he didn't hear me.) "I cannot stay in. I have a neuro-muscular disease." His reply "You should stay in anyway!" (What the ____?!)

So many people... So many clueless people.

Kimber

Kimber you made me laugh! Which for today is nothing short of a miracle --- Thanks...

Great post, article and comments.

When people who know about my MG make the comment "You are looking great" I normally tell them "Thanks, I'm now working on feeling as good as I look"

Bruce