Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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larissam 05/27/2012

I know the word "incontinence" brings a twisted smile to our faces but seriously, does having MG mean I need to start investing in adult briefs? I continue to do kegel exercises but lately it does not make an ounce of difference.

I've deleted the jokes and will leave it at that!
Larissa ;)

deleted_user 05/28/2012

If we all go out together it needs to be to a place where there is more than one commode!!

meredithp 05/28/2012

I'm with AES1900. I just put 2 & 2 together and came up with MG.. So glad for the explanation and to know I'm not the only woman in Texas wetting her pants!

deleted_user 05/28/2012

Ironic that the ad on the bottom while reading this thread was for Depends. I had a terrible time back when I was taking pred (it'll be a long time before I dare to show my face in a certain Subway again), but I'm doing better now. And ive learned that I might as well just go, since the urge won't go away in its own (except in a bad way).

mermaid3 05/28/2012

Brings a whole new meaning to "Go with the flow!"!!!!

Oddly i sometimes have problems getting things started even though the bladder feels like it is about to rupture! Oh the wondeful things we can share on this site.....glad you all are so understanding. thanks!!! (always helps to vent and know you are not alone!!)

deleted_user 05/28/2012

Well at least your faucet isn't always in leak mode. :)
Dean

deleted_user 10/22/2012

I started having problems with leaking in my 35s after the childbirth. It was very tired to take care of the baby and the family. But what mostly embarrassed me is the incontinence problem. My doctor advised that I should do Kegel exercises. I tried it, but there is not any improvement. Actually, the Kegel exercise is not difficult, but how do you know you're making any progress and, honestly, it's something that is easy to forget. Nothing seemed to help me until I tried XFT Pelvic muscle trainer. It is amazing! That little gadget has really helped me a lot. My urinary incontinence disappeared in 3 months after the training! I would like to recommend it for you if you are suffering the same problem like me.
http://www.xft-china.com/product/detail_20_Pelvic_Muscle_Trainer_XFT-0010.html

deleted_user 10/22/2012

A few months ago when MG was at its worst for me, and I took a lot of Mestinon, I had a lot of urgency to urinate with many rushes to the bathroom or in my rural area, to the bushes.

After getting MG mostly under control with prednisone and stopping Mestinon, I did't have that problem much anymore. I am not sure if was the MG or the Mestinon or the combination, however, it is great to have improved.

I have noticed that as I tapered down on prednisone over the last two months, I am again having a little urgency(without taking any Mestinon now). I think Mestinon might have added to the urgency/control that might come with MG--a dribble down effect like tax cuts for the rich ;-)

Cabbage7 10/23/2012

Join the MG club. I probably am in the bathroom over 50 times a day. Mestinon and muscle weakness is the culprit. I tried the Kegel exercise
and it didn't help me either. I haven't discuss it with my Neuro yet.
Cabbage7

deleted_user 10/23/2012

My father is going through this issue right now where he can't hold his no. 2. He goes like 3-4 times a day, specifically right after he eats a meal. At lease with the no. 1 he walks around with a portable plastic urinal to have at hand when he has the sudden urge to pee.

Has anyone found anything to help with the incontinence? I am afraid as he slowly increases his Mestinon (currently at 60 mg/day) that this will become a bigger problem. He is also taking 15 mg/day of Prednisone and 1500 mg/day of CellCept.