Ever since I got out of the hospital at the end of January I have had to use some kind of protection and carry one in my purse incase something happens. When I am with a group and I have to go again I just say that that is one of the muscles that doesn't work right. If that is not bad enough with urine, twice thankfully at home I wasn't able to run fast enough with my morning diarrhea spells. That is more than worrisome.

I find that when I eat high protein like steak then I can hold it. If I go meatless then I can not.

I will be talking to my neuro doc in about a week.

Salmon is also high in protein.

I do where a panty liner when not at home.

I didn't realize that maybe the MG is the reason I am suffering from incontinence a lot lately! Good grief!!

yep...in the same club... dont leave home with out it.. ugg

I need to buy stock in diapers and sanitary pads. I wear diapers with a pad inside. THEN I have to go to the bathroom every two hours. It has been on my list to talk to Specialist about but there may be problems. First of all mine is so advanced that means advanced measures will need to be taken. Second I heal so poorly. I hate to think this is my life just as I don't want MG in my life. It is what it is and for now unfortunately I have no other choice.
Dean

Dean! Very glad to see you posting! Love your family!

Incontinence: at least - some of this problem?
Is due to the meds, that we all take.
My neuro & urologist - both agree on this subject.
(My urologist has a relative, with an autoimmune disease, similar to MG. So my urologist - has some personal experience, dealing with this subject.)

I've conducted my own experiments, with dosages.
As many of you have, too.
In my case? There is no doubt.
My meds - and the level of the dosages - of those meds?
Definitely affect the bladder - and beyond.

MG: the gift that keeps on giving!
- Ross
(I attend granddaughters' events, all the time, usually a 2 hr trip up, and 2 hrs back. If I'm due for meds, during this time frame? I take half, when it's due. And take the other half, when heading home. Often, I have to take - the other half of the dosages, before I would really like. But it all seems to work out okay.)
(I also sit near the door!)
L: I deleted - most of the jokes, anyway!

OK, well since my meds have been raised 275 mg a day this problem has shown its face at my place twice, both times were in the morning and lucky I was at home. I thought I could out run it, but had no control. No problem with no. 1 but no. 2 If someone has suggestains please.
Will

This was a big problem for my partner before he passed away. Before diagnosis it ranged from severe constipation to incontinence at the most inconvenient times for him. After diagnosis it continued and really made life difficult for him .

This was a big problem for my partner before he passed away. Before diagnosis it ranged from severe constipation to incontinence at the most inconvenient times for him. After diagnosis it continued and really made life difficult for him .

This was a big problem for my partner before he passed away. Before diagnosis it ranged from severe constipation to incontinence at the most inconvenient times for him. After diagnosis it continued and really made life difficult for him .

This was a big problem for my partner before he passed away. Before diagnosis it ranged from severe constipation to incontinence at the most inconvenient times for him. After diagnosis it continued and really made life difficult for him .

This was a big problem for my partner before he passed away. Before diagnosis it ranged from severe constipation to incontinence at the most inconvenient times for him. After diagnosis it continued and really made life difficult for him .

uugghhhh the more I read someday about this stupid disease the less I want to know. Although I guess in some area's I will at least have fair warning so I am gratefull for that.

I dont' have an official dx yet, so no meds on board. What I have noticed is that should my body be worn out really bad, I don't have to strenght to pee like I used to. Someday's I just have to sit and wait for it dribble out all on its own.

Although I guess if I have to choose between adult products to hide accidents and a cath to get it out, I will take the adult products. If it comes to it with the meds.
So far the only time I have wet myself is when I have had the puking flu.....uhhggg have you all mentioned that this disease really sucks, I suppose all diseases do, but gosh, I'm only 35

For some of our younger members keep in mind there may be many contributing factors to the symptoms we currently experience and expect to experience down the road. Age, natural childbirth X 2, MG & meds have led my bladder to where it is today. Just as the severity of our shortness of breath my be linked to whether or not we were / are smokers.

I am learning a funky new walk where I can move forward with my legs crossed. I expect it's only a matter of time before someone asks what the heck I'm doing!

I don't mean to minimize anyone's situation, I certainly can relate to the challenges we all face. Humour is how I handle stressful times.
Then I laugh so hard I pee my pants anyway!

Ugh!
Larissa

Larissa,
Keep laughing anyway.

My GYN said never to wait. That's hard for someone who was taught not to use public facilities.

That upbringing may also contrbute to the psychological dimensions of my problem which is being fine until I get within sight of the toilet and then I definitely prefer elastic waists or my jeans that have gotten so loose, I don't have to unbutton them.

We should go out together. You can walk funny and direct me into the stalls, since I will need to close my eyes (clean ones please). That should be enough to confuse any inquiry. b.