Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hello folks, am glad to find you here today because i have suffered for over 3 years without finding anybody to talk to about MG. I was diagnosed with MG in 2014 just after my graduation from college. Before the diagnosis my symptoms were severe but after i started using mestinon and prednisone tablets, i felt better though the weakness will always come upon any lengthy physical exercise even now. I took the drugs for about five months and i coun't afford them anymore coz here in Kenya they are expensive and rare. Up to date i still feel like am normal although i can't run or lift heavy items. I don't know what might be cooking since i stopped the drugs almost 3 years ago.I really need your advice if you've got this experience. Currently am 31 years old.
Sorry to hear about the difficulty in getting medications in Kenya. Hope you continue to be able to function without them. The most common treatment in the US for folks with MG is pyridostigmine (Mestinon) and prednisone. I think prednisone is inexpensive in the USA and likely around the world. Pyridostigmine is more expensive and treats the symptoms rather than the underlying disease, but helps with getting through the day.
It is difficult to know what to do when medications are too expensive to afford.
Good Luck
Russ
I have been following these chats and i found out that it is like i share the same condition as you. I just don't know whether to call it mild or long remission period be cause right now am not on any drug( 3 years now) and still can do a lot of things except running and physical exercise.