Hello folks, am glad to find you here today because i have suffered for over 3 years without finding anybody to talk to about MG. I was diagnosed with MG in 2014 just after my graduation from college. Before the diagnosis my symptoms were severe but after i started using mestinon and prednisone tablets, i felt better though the weakness will always come upon any lengthy physical exercise even now. I took the drugs for about five months and i coun't afford them anymore coz here in Kenya they are expensive and rare. Up to date i still feel like am normal although i can't run or lift heavy items. I don't know what might be cooking since i stopped the drugs almost 3 years ago.I really need your advice if you've got this experience. Currently am 31 years old.
Hi I am writing on behalf of my 79 year old mother who has been newly diagnosed. She is on Mestinon but having terrible diarrehea and an upset stomack. Anyone had similar symptoms? Decreasing the dosage to see if those side effects disappear.Any suggestions from those of you who deal with this condition would be appreciated greatly!
I found out that we MGers are eligible to donate our organs such as kidneys, pancreas, liver, heart, lung, and intestines after death. There is no age limit. However, at least in Pennsylvania (where I live) transplant centers are presently not permitted to use our tissues such as corneas or bones. I am thrilled and have already registered myself as an organ donor. Here's the information and...